e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Cognitive Surplus & Tough Economic Times: An Explosive Cocktail?
The growth of the e-Patients movement may be experiencing surprising strength from a completely unexpected source, with many people growing the ranks of the movement because of the greatest motivator […]
Dr. Val Jones Leaves Revolution
Although not explicitly mentioned, it appears Dr. Val Jones, the Senior Medical Director at Revolution Health, has quietly left the company and is starting her own venture, Better Health. You can read an interview where she discusses her new life online, with not a single mention of her 2+ year efforts at Revolution. Rumor has it that Revolution actually terminated most of its relationships with medical staff, moving highly paid doctors like Dr. Val from full-time to a consulting role only. Glad to see her move on with her own “brand” and venturing out on her own!
Pareto’s Tyranny vs. the Paradox of Rarity: Why ACOR succeeded
Why have rare diseases been so disproportionally represented in the online medical communities since we started creating these resources in the early 90s? Could the Pareto Principle be responsible for this unusual finding?
For Sale: Revolution Health
Why is Steve Case’s online health venture already looking to sell itself, just a year and a half after it launched? Yet another tale of hubris in the e-health sector. […]
Cloud computing puts your health data at risk?
In today’s
Windows Secrets, Stuart Johnston writes about the pros and cons of having our health data out on the Internet, as proposed by Google Health and Microsoft HealthVault. Quotes: “Selling prescription records is a multibillion-dollar-a-year industry”; “Disclosure of health information is [already] out of control.” Yikes?
e-patients: How they can help us heal healthcare, chapter 1
e-Patient Dave joined this group in March 2008 thanks to an introduction by Danny Sands, MD, his primary care physician. Dave quickly established himself as the number one fan of […]
Healthcare Quality Movement conference in Boston
Please read these quick posts being submitted in real time from an event today. Contains much important (to me) info on what’s going on to improve healthcare. Every e-patient advocate […]
Nexthealth: a picture worth a thousand words
Jen McCabe Gorman drew a picture at HealthCampDC on Friday that I really liked. Luckily, I found this image of her Medicine 2.0 presentation, so nobody has to decipher my […]
Participatory Medicine at NIH, part 2
The National Institutes of Health recently gathered a group of consumers and people who study them. We met off-site at a hotel in Bethesda, which I thought was an apt […]
Safety Net Populations
I recently spoke at a workshop entitled Patient Online Access in the Safety Net. (Check out these related posts.) Click image to view full size original. The organizers, Ted Eytan […]
Comarow on Quality
Avery Comarow’s blog on USNews.com is my personal find of the week. I once worked with Avery, so I know he tells it like it is, and he’s tackling an important topic. Check out his take on the CMS Hospital Compare page: Hospital Deaths Go Public.
Not Just a Pretty Picture
The Journal of the National Cancer Institute published health risk data in a way that only a researcher would love (Reason.com’s Hit & Run blog links to the subscription-only charts […]
