e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Pareto’s Tyranny vs. the Paradox of Rarity: Why ACOR succeeded
Why have rare diseases been so disproportionally represented in the online medical communities since we started creating these resources in the early 90s? Could the Pareto Principle be responsible for this unusual finding?
For Sale: Revolution Health
Why is Steve Case’s online health venture already looking to sell itself, just a year and a half after it launched? Yet another tale of hubris in the e-health sector. […]
Cloud computing puts your health data at risk?
In today’s
Windows Secrets, Stuart Johnston writes about the pros and cons of having our health data out on the Internet, as proposed by Google Health and Microsoft HealthVault. Quotes: “Selling prescription records is a multibillion-dollar-a-year industry”; “Disclosure of health information is [already] out of control.” Yikes?
e-patients: How they can help us heal healthcare, chapter 1
e-Patient Dave joined this group in March 2008 thanks to an introduction by Danny Sands, MD, his primary care physician. Dave quickly established himself as the number one fan of […]
Healthcare Quality Movement conference in Boston
Please read these quick posts being submitted in real time from an event today. Contains much important (to me) info on what’s going on to improve healthcare. Every e-patient advocate […]
Nexthealth: a picture worth a thousand words
Jen McCabe Gorman drew a picture at HealthCampDC on Friday that I really liked. Luckily, I found this image of her Medicine 2.0 presentation, so nobody has to decipher my […]
Participatory Medicine at NIH, part 2
The National Institutes of Health recently gathered a group of consumers and people who study them. We met off-site at a hotel in Bethesda, which I thought was an apt […]
Safety Net Populations
I recently spoke at a workshop entitled Patient Online Access in the Safety Net. (Check out these related posts.) Click image to view full size original. The organizers, Ted Eytan […]
Comarow on Quality
Avery Comarow’s blog on USNews.com is my personal find of the week. I once worked with Avery, so I know he tells it like it is, and he’s tackling an important topic. Check out his take on the CMS Hospital Compare page: Hospital Deaths Go Public.
Not Just a Pretty Picture
The Journal of the National Cancer Institute published health risk data in a way that only a researcher would love (Reason.com’s Hit & Run blog links to the subscription-only charts […]
Eyeballs AND Data, Please
Jeff Howe’s blog post, “Can We Crowdsource Medical Expertise?” elicited the following comment from Daniel Reda of CureTogether.com: “Personally, just like I have batting averages, crash test ratings and historical […]
What’s in *your* MIB?
[Video at http://services.brightcove.com/services/viewer/federated_f8/1418520436 is no longer available] A week ago Ted Eytan posted about a Consumer Reports Health blog post, including a video of a patient who is unable to get health insurance because of an error in...
