e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
An e-Patient Hero Leaves Us
Randy Pausch, teacher, speaker, e-patient, and father dies at 47.
Surprise! Students Find Inaccurate Health Information Online
A new study in the Journal of Medical Internet Research (JMIR) suggests that inaccurate medical information is easily found and regurgitated by students. But the topic the study chose to […]
Now THAT’s an e-participating patient
From ScienceRoll: “Jan Martens at Medblog.nl … mentioned Maarten Lens-Fitzgerald who should be considered one of the best examples of e-patients in the world. See why…” Hey Jen McCabe Gorman, what is it with the Dutch?
Can Professional Medical Societies Further the Ideals of Participatory Medicine?
Professional medical societies are not quite like the secret society Skull and Bones at Yale University, but they may well look that way to many patients. In most cases, their […]
Steal these slides
Click images to view full size originals. Last weekend I stumbled across the "attic" of Tom Ferguson MD, who was the "George Washington of patient empowerment," as CNN put it this month, citing his work since 1975 to create a world of freedom and power for patients....
Statistics, Genetics, and Playing the Lottery
I learned two important lessons in a statistics course I took in college: 1) don’t play the lottery; 2) be skeptical of statistics, especially nice-looking charts and graphs. Yes, I […]
Are on-line pharmacies a threat to participatory medicine?
In a piece in the New York Times 7/9/08 (Abuses are Found in Online Sales of Medication) a report (also out Weds) from Columbia University is described. According to the […]
E-patients with Agency (or Attitude?)
What are the social and psychological factors that affect how someone is treated — or even their health outcomes? This question has popped up in my reading and in my […]
The Two Toms
Our dear friend, our brother, our hero, the inimitable Doc Tom, died on Good Friday 2006. Even though his untimely death came as a shock, Tom Ferguson had already far […]
Observations of Daily Living and Personal Health Records
Following up on Gilles Frydman’s comments about Observations of Daily Living (ODL), we found another ODL post by e-Patients Group ally Kevin Kelly at The Quantified Self: Detailed quantifiable self-observation […]
Patriotic Participation
[Don’t miss yesterday’s related post about the founding heroes of patient empowerment.] Something important is afoot in the land when people are able to access and share “industrial strength” information […]
CNN’s “Empowered Patient heroes” recognizes Tom Ferguson and Gilles Frydman
Today’s entry in the CNN.com “Empowered Patient” series, by medical correspondent Elizabeth Cohen, is titled Empowered heroes’ hard lessons now help others: This week, as we reflect on American heroes, […]
