e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
E-patient Interview: Keith Schorsch
When Keith Schorsch began suffering from facial paralysis, fatigue, and severe muscular and skeletal pain, eleven doctors failed to identify the cause. Luckily, a friend recognized the symptoms as similar to what she had suffered when she had Lyme disease – and that’s...
How do US journalists cover medical news?
A really interesting evaluation of 500 medical stories from the press covering treatments,tests, products & procedures is available at PLoS.
This should be required reading for anyone interested in the power of e-patient groups, since these groups very often debunk improperly reported news.
Nice Review at Consumer Reports
Orly Avitzur, a neurologist and e-Patient savvy doc, is now a medical editor at the Consumer’s Union/Consumer Reports. She’s written an excellent short review of some of the important developments […]
Unimplementable standards: seedie.org
A tip of the e-hat to Dr. Ted for this *splendid* reading for people involved in EMR/PHR: SEEDIE: Society for Exorbitantly Expensive and Difficult to Implement EHRs. Don’t miss the […]
e-Patient stories: several types
Cross-posted (with additions) from my own blog 5/25/08 As I talk to people about “participatory medicine” and patient empowerment, I’ve needed to think out what that term really means when […]
In memorial: e-Patients Have Lost an Important Leader
On Sunday, May 25, 2008, The Sojourner died. She was perhaps one of the most active and loved e-Patient users of the virtual world Second Life. In the real world […]
Here Comes Everybody
Over on the Inkwell, our own Jon Lebkowsky is interviewing Clay Shirky, author of “Here Comes Everybody.” My favorite quote so far: “The places where experts matter and flourish are […]
What can you do while you’re sitting in the doctor’s office waiting room?
The new iPhone tool — Symptom Navigator (http://iphone.adam.com) created by A.D.A.M. is a free new mobile health content tool for iPhone & iTouch.
Two Research Papers Published on PatientsLikeMe
Two research papers were published this month on the Health 2.0 website, PatientsLikeMe. PatientsLikeMe is arguably the only “real” health social network online today, because it lets patients share actual […]
What patients really want
What patients really want: an introduction to the e-patient” cites our own Dr. Danny Sands in his video editorial on Medscape. Please consider supporting the Society by joining us […]
Health Commons
Bringing healthcare solutions R&D into the 21st century: “the drug discovery process is broken,” how do we fix it? Science Commons suggests the creation of a Health Commons. The problem […]
Google Releases Google Health
Google Health launched this week to the public. It is pretty much what everyone anticipated — an online electronic record that people can maintain if they wanted to. Highlights include […]
