e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
The Plausible Promise of Participatory Medicine
I think participatory medicine is what Eric Raymond calls a “plausible promise”: something big enough to inspire interest yet achievable enough to inspire confidence. Reforming health care is too big […]
Patient Activism
If you have doubts about the impact of social media on health care, please read this 2005 post on The Health Care Blog about a grandmother’s campaign on behalf of […]
Electronic Medical Records No Panacea
If you didn’t hear, lots and lots of people snooped into celebrities’ medical records in L.A. — the number of people who’ve been caught just at the UCLA Medical Center […]
Um, let’s start by just being polite
Maybe it’s just me, but this one’s a little astounding. According to Paul Levy’s blog, a Perspectives column in the New England Journal of Medicine “suggests that doctors enhance their […]
Randy Pausch, empowered patient / participatory medicine
Chapter 12 of Randy Pausch’s best-selling book The Last Lecture opens with a classic anecdote of what it looks like when an empowered patient practices participatory medicine with an equally […]
Consumers? Wha?
Update 5/19: Wonderful news! Today I was invited to represent the consumer perspective at this event! Kudos and thanks – I intend to add real value. Investors and disrupters to […]
Sheryl Stein’s info hunt: an e-patient odyssey
Sheryl Stein’s e-patient interview was great in its own right, but she struck bonus paydirt when she responded to this question: You say “So I began to research ITP and […]
Participate in defining “Health 2.0”
e-Patients, alert! Time to participate in creating the lexicon. Ted Eytan MD is open to suggestions on his definition of Health 2.0 – he’ll be giving a talk soon and […]
Upcoming Conferences
I’ll be in Boston tomorrow for a World Congress Leadership Summit. The organizers certainly use all the right key words to describe the event; I’m kind of hoping the presenters […]
E-patient Interview: Sheryl Stein
Sheryl Stein, known to many as “wrekehavoc,” dispenses her wisdom and humor on a 6,000-member online community of parents (using good old listserve technology) and on her blog. In this third edition of our e-patient interviews, Sheryl talks about the power of...
The Wisdom of Patients Report
The California HealthCare Foundation published a report the other day entitled The Wisdom of Patients: Health Care Meets Online Social Media (PDF) which is a nice overview of the current […]
E-patients Unite To Document Problems with Generic Drug
For over 30 years at The People’s Pharmacy, we have been guided by a respect for people’s ability to make informed decisions about their health. We have always welcomed input […]
