e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Meetin’ Up and Building SPM Community in Chicago
In Chicago, SPM members have been getting together for regular meetups. It’s been fun and exciting, and lots of us think it would be great to offer the idea to other areas. Here's how we started and how we do it - take it on and make it your own! This time last year...
SPM’s team leadership search for 2019
Our Society for Participatory Medicine is growing in membership and in projects and teams. If you're a member, have you considered leading a team? If you're not, have you considered joining? The message below was posted last weekend by co-founder and chairman Dr....
Pay people for their data – yes, or no?
SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the digital economy, in healthcare and in all other sectors. Here's the full version of the conversation...
CMS: Use Patient Experts in Measure Development, but Don’t Pay Them?
CMS (Center for Medicare and Medicaid)'s work on Value-Based Measures matters for patients and caregivers because we seek affordable, accessible, equitable, and effective medical care. Or in English: Transparent cost within my means, in a location I can reach, in a...
Getting Your Doctor to Really See You
Doctors are regularly deluged with advice on how to engage patients. But how can you, as a patient, get your doctor to truly engage with you as a person? Your health and even your life could depend upon it. By “engage,” I don’t mean just the doctor not interrupting...
For Diabetes Month, be conscious that language matters.
Lifetime SPM member Deborah Greenwood is a diabetes educator who has long believed in patient empowerment and participatory medicine. SPM welcomes posts authored by our members - see the guidelines. November is Diabetes Awareness Month. And November 14, 2018 is World...
Doc Tom Awardees Announced at SPM2018 Conference
On October 17th, the Society enjoyed their 2nd conference in Boston. Filling a larger room than last year, attendees - in person and virtual - enjoyed an impressive lineup of speakers. The passion in the room was palpable. Much more to come on that. A momentous...
Whither Cochrane, for e-patients and everyone else?
This will be the third, and last, in my short series on attending the Cochrane Colloquium in Edinburgh in September of this year. In the first post, I talked about what that conference was like; in the second, I shared an overview of Cochrane as a global movement to...
At #SPM2018, Ivan Handler (with @MightyCasey) Wants to Put the Care Back in Healthcare
Last of our speaker profiles for #SPM2018 on October 17! Ivan Handler of Insightamation will appear with @MightyCasey in the section “Data: I’ll share mine if you’ll share yours”
The who, what, when, where, and why of Cochrane
If you've been paying attention, you know that yours truly got the chance to attend the annual Cochrane Colloquium in Edinburgh in September this year, thanks to a travel stipend from SPM, a #PatientsIncluded bursary from Cochrane UK, the hosts of the 2018 Colloquium,...
#SPM2018 speaker preview – Brennen Hodge: “Health is the New Wealth”
Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here....
#SPM2018 speaker preview – Jason Bobe: “The future of medicine begins with the patient”
Here’s the latest in our series of posts by and about the outstanding speakers we’ve lined up for the Society for Participatory Medicine’s second annual conference on Oct. 17 in Boston, attached to the prestigious Connected Health conference. Register here....
