e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
The process of shared decision-making: What it is, when it’s not, and what it should be
This is a guest post by SPM member, heart patient and author Elizabeth Rankin, BScN. Some background: one of the most-discussed topics on our blog is shared decision-making (SDM), with pages and pages of posts (75 in the category), dating back to 2010's Salzburg...
Got Candles? Happy 30th Birthday to the World Wide Web!
“Vague but exciting…,” was the response Sir Tim Berners-Lee received when he submitted a proposal for an information management system (aka the world wide web) to his supervisor in March of 1989. Three decades later, we have hit a key milestone, and approximately half...
SPM member Jeanne Pinder on TED home page
The famous TED Talks site TED.com is the holy grail of many evangelists. Aside from the extraordinary visibility it gives your message, and aside from the validation of your message (the site's tagline is "Ideas worth spreading"), it means you've gotten good at it....
Sara Riggare is Swede of the Year in medicine
Sara RIggare, one of the earliest members of our Society, has just received a great honor: Fokus magazine ("Sweden's Time") has named her "Swede of the Year" in medicine. In the photo from the award ceremony she seems appropriately thrilled.:-) A Parkinson's patient,...
So, about this “big data” thing …
On Facebook last Friday our member Carla Berg Nelson posted briefly about a new Psychology Today blog post, Data: the New Window into Humanity, by John Nosta. She tagged a number of other members (and non). I know and respect Nosta from his days creating a LinkedIn...
Gail Phillips: My journey to the Society for Participatory Medicine
Editor's note: this guest post by SPM member Gail Phillips shares the odyssey that led her through numerous related disciplines, eventually discovering our society and our conference last October. Members can submit guest posts to our blog (guidelines). Join SPM here....
Meetin’ Up and Building SPM Community in Chicago
In Chicago, SPM members have been getting together for regular meetups. It’s been fun and exciting, and lots of us think it would be great to offer the idea to other areas. Here's how we started and how we do it - take it on and make it your own! This time last year...
SPM’s team leadership search for 2019
Our Society for Participatory Medicine is growing in membership and in projects and teams. If you're a member, have you considered leading a team? If you're not, have you considered joining? The message below was posted last weekend by co-founder and chairman Dr....
Pay people for their data – yes, or no?
SPM members Casey Quinlan (yes, yours truly) and Jan Oldenburg were part of a trinity of folks debating the idea of paying people for the data they contribute to the digital economy, in healthcare and in all other sectors. Here's the full version of the conversation...
CMS: Use Patient Experts in Measure Development, but Don’t Pay Them?
CMS (Center for Medicare and Medicaid)'s work on Value-Based Measures matters for patients and caregivers because we seek affordable, accessible, equitable, and effective medical care. Or in English: Transparent cost within my means, in a location I can reach, in a...
Getting Your Doctor to Really See You
Doctors are regularly deluged with advice on how to engage patients. But how can you, as a patient, get your doctor to truly engage with you as a person? Your health and even your life could depend upon it. By “engage,” I don’t mean just the doctor not interrupting...
For Diabetes Month, be conscious that language matters.
Lifetime SPM member Deborah Greenwood is a diabetes educator who has long believed in patient empowerment and participatory medicine. SPM welcomes posts authored by our members - see the guidelines. November is Diabetes Awareness Month. And November 14, 2018 is World...
