e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Three Simple Rules
When in 2002 we came out with our bold new concept of “information therapy” I was sure that Tom would love the idea of doctors or health plans prescribing information to consumers. He didn’t. He was concerned that the prescribed information from clinicians would undermine the patient’s right or ability to search for information from other self-helpers…
…I think I am there—but then Tom might still not agree—for I still think that the self-help world will work better when the patient is also being prescribed information as a part of the process of care.
“Communication between Physicians and Patients in the Era of E-Medicine”
The New England Journal of Medicine has a “Perspective” by John H. Stone, M.D., M.P.H., on how E-Medicine is changing the doctor-patient relationship (June 14, 2007). Here’s a memorable quote: […]
Where Online Health Will Be
Tom Ferguson’s White Paper, “e-patients: how they can help us heal health care,” was many years in development. Early in the process Tom convened a gathering at Commonweal in Bolinas, […]
How do you afford healthcare for so many people?
Bloggers at “Et tu?” are discussing Healthcare costs these days and came to the conclusion that one way to help reduce Healthcare costs is by using trusted Internet sites such […]
What is the Place of Complementary and Alternative Medicine?
I have puzzled over this question many times. Today, I found a web site called “The New Medicine” that was based on PBS documentary that has a lot of balanced […]
ePatients and the Shape of Medical Knowledge
David Weinberger, a fellow at the Harvard Berkman Center, speaks eloquently on the way digitization of information is changing the way we define knowledge. In a recent presentation he made […]
Daily Kaizen
I just rediscovered Daily Kaizen, a health care provider blog that maintains an e-patients perspective. I think Ted Eytan, one of the blog’s authors, lives in the future, so I’m […]
International e-Patients
The internet breaks completely all geographical barriers. This is particularly important for those suffering from a rare condition and who do not have direct access to the few major cancer […]
Online Patient Groups
Laura Landro's column in the Wall Street Journal features a series of profiles of online patient groups like MPDinfo.org and ACOR.org, among others. Now seems like the right time to post some data that I've been holding back, waiting for the right opportunity to talk...
Geologic/Patient Ages
Four months ago I had the opportunity to backpack with my son Kevin from the south rim of the Grand Canyon down thousands of feet to the floor of the […]
Some Doctors are Speed Bumps on the e-Patients Road
If you go to enough conferences and industry events, it can sometimes be a bit of an echo chamber, especially if they are things like “Web 2.0” conferences — a […]
Reading Behind the Scenes: CafePharma and Others
The New York Times today featured an article about growing online communities for the drug and medical device makers employees and sales reps (via bookofjoe), such as CafePharma. How does […]
