e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Join SPM Newsletter Team as Editor and Bring Real News to Members!
The Society of Participatory Medicine is currently searching for a Newsletter Editor. Is that you?? The SPM Newsletter is an important communication mechanism. The goal of the Newsletter is to inform members about current events, provide updates on SPM activities, and...
Our Journal of Participatory Medicine: an update, current metrics, how you can help
SPM president Joe Ternullo, formerly of Partners Healthcare, sent this letter to our members this week. It will also be posted as an editorial on the Journal's site. Our Journal, begun as a grass roots initiative at the Society's formation, is a crown jewel. It was...
Shared Decision Making in Imaging: How Should Patients and Physicians Discuss the Costs of Care?
The Society for Participatory Medicine is pleased to announce that we will be partnering with the American College of Radiology to present an important topic in healthcare at the next Learning Exchange, which will take place on April 19, 2017, 2-3PM EST. Join us as...
“Words that annoy, phrases that grate”: BMJ Patient Panel post & tweetchat
We've written often here about the BMJ's leadership on not just listening to patients but looking at healthcare from the patient's perspective. Their patient partnership campaign, launched in 2014, includes a patient advisory panel that works actively to consult with...
Prepare for NEJM’s major web event on sharing research data next week
In November we posted about an extraordinary development: NEJM Data Analysis Challenge: can others create value by seeing researchers’ data? The project has come to fruition, and the big event (free) is next Monday-Tuesday. The question for us: What's the impact on...
Research & drug development news: European Public Health Alliance joins Europe-wide challenge to patent for Hepatitis C treatment
An announcement today in Europe (press release below) brings a new angle to the copious US coverage of drug pricing, such as predatory pricing of the EpiPen and the smirking, seemingly sociopathic Martin Shkreli. For the drug described below, the Médecins du Monde...
Service Agreements Among Friends and Colleagues
I'm an old hippie [left]. I've lived in many houses and on a farm (commune?) with other people. Regularly we heard, "I agreed to what? No I didn't." "Since when is that a rule?" I, and then my wife and I, developed skill in clarifying expectations and...
e-Patient perspective on evolocumab (that new cholesterol study): beyond the headlines
Please cite this post as "by Dave deBronkart, Marilyn Mann and Peter Elias MD" or, on Twitter, "@ePatientDave, @MarilynMann & @PHEski." Our blog software only allows listing one author but they provided 2/3 of the content. The medical news is abuzz - and your...
“Inviting the patient’s perspective” paper: today’s needs, 25 years ago *this week!*
March 1, 1992. 25 years ago. Yesterday I asked When was “Enriching the relationship by inviting the patient perspective” published? The words in that paper's abstract [right] could have been written today - literally every word. It was printworthy a quarter century...
Quiz: When was “Enriching the relationship by inviting the patient perspective” published?
Do not go look this up. I'll post the answer tomorrow. We on this blog know Dr. Tom Delbanco as, among other things, the "father" of OpenNotes, along with "co-parent" Jan Walker, RN MBA. (For a history lesson, Tom's also the lead author on the wonderful 2001 paper...
Dell Medical School and the Future of Care
In 2009, along with several physicians, patients and health activists, I helped form the Society for Participatory Medicine, a nonprofit promoting “a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in...
Participatory Personalized Medicine in Action: Pharmacogenomics in Primary Care
This is a post by SPM Board Member John Hoben - Business Development Director at Bio-Optronics. Hoben’s passion is reconfiguring medical industrial complex assets and transactions from sickness response to true preventive delivery. This entails focusing on realizing...
