e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Don Berwick wants healthcare to take it to the limit, with Patients as Peers
https://www.youtube.com/watch?v=H2SoHLHufv4 Decades ago, there began a rigorous effort to tackle health care problems by focusing on science, improvement and measurement. A prominent driver of all things related to practice betterment has been The Institute of...
Pharma TV ads: Film at 11
SPM members Randi Oster of Help Me Health and Casey Quinlan of Mighty Casey Media made up two thirds of a three woman panel, "Patient Leaders Want To Kill Pharma TV Ads, Right Now," at the 2016 ePharma Summit in New York last week (February 29 through March 2). This...
SPM survey results at HIMSS: “Patients want to be involved with their health information”
It's time again for the gigantic (50,000 people) HIMSS trade show - the Health Information Management Systems Society, in Las Vegas this year. These new SPM slides (on Slideshare) will be shown in the Consumer Engagement zone, summarizing our two surveys on what...
The Precision Medicine Initiative, Patients’ Health Data Rights and You
The recent Precision Medicine Initiative Summit at the White House saw dozens of private entities committing to join with the administration in supercharging the effort to enroll one million patients into precision medicine research programs, collecting and securely...
Why I joined SPM – and why maybe you should!
Guest post by John Hoben, who joined our Society in 2014 and has been a major contributor to discussions on our member listserv. He recently joined our board of directors. He has a particularly great story - he actually met Doc Tom long ago! - and I asked him to...
Meet Donna Cryer, new co-chair of SPM
At 10 ET today (Feb 25) Donna will be a guest at the White House Precision Medicine Initiative, with several other members of our Society. Watch it on livestream. See also our post on the PMI event a year ago by then-president Nick Dawson. I’m thrilled to announce...
Join the #ScopeScope, March 1, to help Fight Colorectal Cancer
This is a hoot. I say this as someone who first blogged in 2008 about this process. On Tuesday March 1, Mayo Clinic will be streaming video of a colonoscopy, live on Periscope, in a broadcast they’re calling The #ScopeScope. Lee Aase, head of the Mayo Clinic Social...
Participatory Medicine: An Administrator’s Point of View
Guest post by Mark Reifsteck [left], who joined our Society in 2014. Follow him on Twitter at @MarkWReifsteck. To become a member, individually or organizationally, see our Join Us page. It started innocently enough: I made an off-handed comment on the SPM member...
Scholarships available to e-patients for palliative care summit
The Coalition for Compassionate Care of California (CCCC) is inviting e-Patients to apply for a scholarship to their 8th Annual Summit in Newport Beach, California, on May 12-13, 2016. The deadline to submit an application is March 10, 2016. Learn more and apply here....
New England SPM members: free admission to 3/29 local HIMSS meeting
SPM members Janice McCallum and Pat Rioux are also members of the New England chapter of HIMSS, the gigantic Health Information Management Systems Society. They have arranged a special deal for SPM members: free admission to their March 29 meeting (if you register by...
Evidence! New S4PM Survey Shows People Want to Collaborate with Their Doctors and Co-Produce Their Clinical Data
A fundamental precept of participatory medicine is that health care should not be a spectator sport—it’s best practiced in a participatory manner. This requires engagement from both the patient and the clinician. Yet the typical behavior of health encounters is not...
Proposal for a TRULY patient-centered medical record
The other night I participated in a very useful Google+ hangout with SPM members Adrian Gropper and Michael Mascia, and Michael Chen [of NOSH, explained below]. The discussion focused on a subject I think is incredibly important: the patient-centered health record....
