e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
on the complexity of problems and ePatients as innovators
One of our Society’s best kept secrets is the composition of our membership. And lately, some of my best collaborations are coming out of conversations with fellow members. Last week, as I frenetically packed for a trip, I was chatting on the phone with our own...
e-Patient efforts on “precision medicine” #LCSM edition
SPM member Janet Freeman-Daily, who's an active voice in the #MedX and #LCSM communities, alerted us to a petition on Change.org that speaks directly to the principles of precision medicine - called for by the President in a White House event attended by our own Nick...
Join @HurtBlogger’s 48-hour “live tweet my chronic life”
LADIES AND GENTS, YOUR ATTENTION PLEASE. The famous @HurtBlogger, chronic pain patient Britt Johnson, has announced that she will LIVE TWEET 48 hours of "her chronic life," MONDAY AND TUESDAY, Feb. 2-3. She has no idea what will happen - might be ordinary, might be...
A landmark day in the movement: Patients in the Front Row
Last Friday, 200 patients, advocates, scientists, doctors and researchers gathered at the White House to hear President Obama’s launch of the Precision Medicine Initiative. According to the President, precision medicine...
The movement gets real: one of Doc Tom’s sightings gets $28 million with Iora Health
There are times in a movement when value is revealed and recognized, and you know something real is happening. In the engaged-patient movement, the first I noticed was when Amy Tenderich's Diabetes Mine blog (and its community) was acquired several years ago. That...
From OpenNotes to OurNotes: New project heads toward *real* participatory medicine
I'm beyond thrilled. Way beyond thrilled. This is going to take some figuring out, but is this what we've been striving toward, or what?? For years we've written here about the OpenNotes study (MyOpenNotes.org), funded by the Robert Wood Johnson Foundation, which...
Opening the ICU doors to family: report from Virginia Mason
Cross-posted from my personal blog yesterday On Twitter Friday night I learned from Dr. Sachin Jain of a November article that should be of interest to all of us who want to work toward full patient and family engagement in all aspects of medicine. To be sure, the...
CHCF’s iHealthBeat podcast on online communities
One of the California Health Care Foundation's regular projects is iHealthBeat, "Reporting technology's impact on healthcare." Wednesday they released a five minute podcast on patient communities, which are of course a core activity of engaged patients and thus of...
Patient Generated Health Data webinar featuring SPM members
The Health Data Consortium, the folks who bring Health Datapalooza to life in DC every year, have increased the input of the Consumer Circle ahead of this year's event, which is on the calendar for May 29 thru June 3 at the Marriott Wardman Park in Washington DC. As...
For the #MedX “year of doing”: “Don’t be a nail”
Our movement seems to be entering a turning point, and today Paul Levy's blog had a great example. The change is embodied by the 2015 theme of our e-patient conference buddies at Medicine X: "This is the year of doing." In my view this means two things: bringing it...
Great Marie Ennis-O’Connor infographic on live-tweeting an event
E-patients know that social media can be a potent tool for spreading the movement, spreading the message, and connecting with others. Some of us are better at it than others; if you're looking for someone to follow who does it well, try SPM member and Medicine-X...
Hot Trends in Health Care for 2015
MHealth Over 90% of the world's population has some type of mobile phone, according to reports from the ITU (International Telecommunications Union and PEW research. mHealth will continue to be a major factor in technology and health in 2015, with new apps that...
