e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
The movement gets real: one of Doc Tom’s sightings gets $28 million with Iora Health
There are times in a movement when value is revealed and recognized, and you know something real is happening. In the engaged-patient movement, the first I noticed was when Amy Tenderich's Diabetes Mine blog (and its community) was acquired several years ago. That...
From OpenNotes to OurNotes: New project heads toward *real* participatory medicine
I'm beyond thrilled. Way beyond thrilled. This is going to take some figuring out, but is this what we've been striving toward, or what?? For years we've written here about the OpenNotes study (MyOpenNotes.org), funded by the Robert Wood Johnson Foundation, which...
Opening the ICU doors to family: report from Virginia Mason
Cross-posted from my personal blog yesterday On Twitter Friday night I learned from Dr. Sachin Jain of a November article that should be of interest to all of us who want to work toward full patient and family engagement in all aspects of medicine. To be sure, the...
CHCF’s iHealthBeat podcast on online communities
One of the California Health Care Foundation's regular projects is iHealthBeat, "Reporting technology's impact on healthcare." Wednesday they released a five minute podcast on patient communities, which are of course a core activity of engaged patients and thus of...
Patient Generated Health Data webinar featuring SPM members
The Health Data Consortium, the folks who bring Health Datapalooza to life in DC every year, have increased the input of the Consumer Circle ahead of this year's event, which is on the calendar for May 29 thru June 3 at the Marriott Wardman Park in Washington DC. As...
For the #MedX “year of doing”: “Don’t be a nail”
Our movement seems to be entering a turning point, and today Paul Levy's blog had a great example. The change is embodied by the 2015 theme of our e-patient conference buddies at Medicine X: "This is the year of doing." In my view this means two things: bringing it...
Great Marie Ennis-O’Connor infographic on live-tweeting an event
E-patients know that social media can be a potent tool for spreading the movement, spreading the message, and connecting with others. Some of us are better at it than others; if you're looking for someone to follow who does it well, try SPM member and Medicine-X...
Hot Trends in Health Care for 2015
MHealth Over 90% of the world's population has some type of mobile phone, according to reports from the ITU (International Telecommunications Union and PEW research. mHealth will continue to be a major factor in technology and health in 2015, with new apps that...
Consumer Reports: “Respectful” treatment key to patient safety?
In a report released today (December 16, 2014), Consumer Reports shares insights from a survey of 1,200 people who were recently hospitalized. SPM is not surprised by the findings, which include the fact that patients who said they received respectful treatment by...
What happens when patients can accurately make their own diagnosis?
A physician friend once shared his belief that the main product of a physician’s productivity is the diagnosis. Setting aside feelings about the notion of a work product in medicine, I’ve quite liked the simplicity of his distillation. The diagnosis is the...
Engaging Patients in Safety: Naughty or Nice?
This post by long-time SPM member Michael Millenson first appeared on the EngagingPatients.org blog. We're re-posting it here to both put it on the membership's radar, and to invite comments on Michael's POV that "As much as we can argue that patient engagement with...
Sequencing Your Genome: Opportunities and Challenges
Rapid advances in the technologies giving scientists the ability to analyze, understand and identify the unique characteristics in the genome of every human being are now being translated into clinical applications that are actually prolonging the life of many...
