e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
SPM Response to ONC RFI on Advancing Interoperability of EHRs and HIE
With the tireless help of Adrian Gropper, and the counsel of executive committee members Michael Millenson and Danny Sands who went above and beyond, and our President Sarah Krüg, the Society for Participatory Medicine's Public Policy Committee completed a last-minute...
The Black Box of You: Why the Quantified Self is so Frustrating Today
Imagine a black box. You can feed all sorts of information and data into it all the live long day. But the amount of data you can get out of it is limited. It just stares back at you with its blank, neutral sides. It can tell you things like where it was manufactured,...
Farewell (seven years ago today), Doc Tom
This morning on Facebook, an SPM member (who were you??) pointed out that it was seven years ago today that "Doc Tom" Ferguson, the visionary who foresaw the e-patient movement, passed away unexpectedly while being treated for multiple myeloma. Click the image (or...
Clinicians are from Mars, e-Patients are from Venus
Are clinicians from Mars and e-Patients from Venus? My experience is e-patients and clinicians can agree that they seek best health. Yet there is such a disconnect, such frustration, so much of the time. Participatory medicine strives to bridge the gaps between...
Veteran Internet Use and Engagement With Health Information Online
New analysis of the Pew Research Center's 2010 health survey results show differences among three populations: veterans of the U.S. military who obtain their health care within the Veterans Health Administration of the U.S. Department of Veterans Affairs (VA);...
Who Are These Guys? Why the PCORI Picks Matter And a Lot More Than You Probably Realize
This guest post by Michael L. Millenson originally appeared on The Health Care Blog. Michael is president of Health Quality Advisors LLC in Highland Park, IL; the Mervin Shalowitz, MD Visiting Scholar at the Kellogg School of Management; and a board member of the...
Anniversary of a health data earthquake
Four years ago this week, e-Patient Dave published, "Imagine someone had been managing your data, and then you looked," and forever changed the national conversation about health data. I have described that post as an earthquake -- a surprise to those who were not...
A sign of the times: thyroid cancer patient says TWO docs recommended a patient organization
Well well well, dare I say the times are changing? Not long ago all we ever heard was "Stay off the internet." But a friend just said his endocrinologist and his radiologist BOTH recommended ThyCa.org to him! (Twitter: @ThyCaInc) It's "created and maintained by...
Provide Your Input to Inform ONC’s Consumer eHealth Strategy
On Monday, March 25, 2013, ONC, in collaboration with Cornell University, launched a new web platform for obtaining public input to inform health IT strategic planning. Check out the new PlanningRoom site, and provide your thoughts. ONCs initial focus is on consumer...
Tweetchat on Wed March 20 about Gimme my DAM Data, Blue Button Plus and Commonwell
Please join us for a tweetchat this evening - Wednesday March 20 at 8 PM ET/ 5PM PT. We'll talk about: What's new with Gimme my DAM Data #gmdd ? - Wall Street Journal picked the story at SXSW conference...
RECENT rule violations that caused serious harm: CMS releases searchable database
For the patient safety crowd - which is all of us, when we shop for medical services: Cheryl Clark of Health Leader just posted this on Facebook, from this weekend's Boston meeting of the Association of Health Care Journalists (AHCJ): "For the first time, providers,...
“Show Me the Data!” – Eric Topol rocks the #HIMSS13 keynote
Not only did famed cardiologist Eric Topol wear his brand new Regina Holliday "Walking Gallery" jacket this morning, for his major keynote address at the HIMSS health IT conference; he cited several other members of our society, including Hugo Campos. Then he ended...