e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Massively Open Online Medicine: Bad Idea or Just Before Its Time?
The new darling of the online educational community is Massively Open Online Courses (MOOCs). The example which figures most prominently in the popular imagination is the Khan Academy, though its founder says otherwise, noting that MOOCs are merely online...
Monthly Introduction to e-Patients.net
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This...
How do (older, lower-income) patients learn?
Rebecka Sexton of the Center For Innovation at the Carilion Clinic in Roanoke, VA, emailed a great question and I'd like to share it more widely: We are working on a project here at Carilion on chronic diseases related to Population Health Management related to COPD....
How Things Change
SPM member Jody Schoger's post “Cancer: Part Two” at her blog Women with Cancer landed with a big thud on April 26. Schoger was recently diagnosed with metastatic breast cancer. She’s a co-founder of #bcsm (breast cancer social media), one of the highest...
A picture worth a thousand “What if health care..?” words
What if kids were given the support to participate in and understand their own health care? - @savingcase For more health care dreams, please see: What if health care...? (Storify) Or any of my other #whatifhc posts.
SPM Response to ONC RFI on Advancing Interoperability of EHRs and HIE
With the tireless help of Adrian Gropper, and the counsel of executive committee members Michael Millenson and Danny Sands who went above and beyond, and our President Sarah Krüg, the Society for Participatory Medicine's Public Policy Committee completed a last-minute...
The Black Box of You: Why the Quantified Self is so Frustrating Today
Imagine a black box. You can feed all sorts of information and data into it all the live long day. But the amount of data you can get out of it is limited. It just stares back at you with its blank, neutral sides. It can tell you things like where it was manufactured,...
Farewell (seven years ago today), Doc Tom
This morning on Facebook, an SPM member (who were you??) pointed out that it was seven years ago today that "Doc Tom" Ferguson, the visionary who foresaw the e-patient movement, passed away unexpectedly while being treated for multiple myeloma. Click the image (or...
Clinicians are from Mars, e-Patients are from Venus
Are clinicians from Mars and e-Patients from Venus? My experience is e-patients and clinicians can agree that they seek best health. Yet there is such a disconnect, such frustration, so much of the time. Participatory medicine strives to bridge the gaps between...
Veteran Internet Use and Engagement With Health Information Online
New analysis of the Pew Research Center's 2010 health survey results show differences among three populations: veterans of the U.S. military who obtain their health care within the Veterans Health Administration of the U.S. Department of Veterans Affairs (VA);...
Who Are These Guys? Why the PCORI Picks Matter And a Lot More Than You Probably Realize
This guest post by Michael L. Millenson originally appeared on The Health Care Blog. Michael is president of Health Quality Advisors LLC in Highland Park, IL; the Mervin Shalowitz, MD Visiting Scholar at the Kellogg School of Management; and a board member of the...
Anniversary of a health data earthquake
Four years ago this week, e-Patient Dave published, "Imagine someone had been managing your data, and then you looked," and forever changed the national conversation about health data. I have described that post as an earthquake -- a surprise to those who were not...
