e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Caregivers Online
A new Pew Internet/California HealthCare Foundation report is out today: Family Caregivers Online. I thought I'd give some background on why we did the study and a few key take-aways. Caregivers are alpha geeks of health care 30% of U.S. adults are currently caring...
NeHC and ONC organize an eHealth Engagement Summit
Thanks to Keith Boone for blogging about this summit and raising the issue of why NeHC members were notified about this meeting with only four days notice! http://motorcycleguy.blogspot.com/2012/07/pushing-patients-around-not.html
CureTogether acquired by 23andme
Big news today in the health geek world: CureTogether has been acquired by 23andme. For those just tuning in, CureTogether enables people to track and share their personal wellness experiments so that others can benefit from what they learn. 23andme enables anyone who...
Idelle Davidson: “ASCO, Where Have You Been?”
This guest post by Idelle Davidson originally appeared in the Huffington Post as “ASCO, Where Have You Been? The organization that sets standards for cancer care does not include cognitive issues in their patient consent document.” Last month, I was in Arlington, Va....
How American Independence Created a New Kind of Patient
By Michael L. Millenson The empowered patient, skeptical of professional authority, is not a new phenomenon: he was actually created by the American Revolution. Reading through historian Gordon Wood’s Pulitzer Prize-winning book, The Radicalism of the American...
Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This blog...
Mayo Clinic Scholarship Contest for e-Patients
This post originally appeared at http://socialmedia.mayoclinic.org/2012/06/20/2012-patient-caregiver-scholarship-contest-for-social-media-summit/. The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to attend its Social Media...
Bowling Alone, Healing Together
One year ago, I read a JAMA commentary that was so good I had to stand up while I was reading it: Are Patients Knights, Knaves, or Pawns? I blogged about it here (touching off a heated discussion) and started an email correspondence with one of the authors, Sachin...
ONC discusses giving data to patients – more on the Blue Button initiative
Lygeia Ricciardi from ONC with a discussion about giving patients access to their data and a call for patients to volunteer in ONC's worksgroups http://www.healthit.gov/buzz-blog/electronic-health-and-medical-records/making-patient-access-health-information-reality/...
A patient story: HIMSS’ Adam Bazer on IT from a patient’s perspective
From the HIMSS Blog, Adam Bazer with a personal health story where even in a great hospitals the IT is not as connected as can be. We wish your son Ari well, Adam! http://blog.himss.org/2012/06/25/healthcare-it-from-the-view-of-a-worried-father/ The link inside the...
Patient engagement of the financial kind: “Getting Lost in the Labyrinth of Medical Bills” (NYTimes)
In our Society for Participatory Medicine we define this new approach to medicine as ...a movement in which networked patients shift from being mere passengers to active drivers of their care, and providers encourage and value them as full partners. An article in...
Checklists for children hospital stays
Member Elisabeth Bailey published a few articles on the Dr Greene website. Her recent book, The Patient's Checklist, got great reviews and is a great workbook for anyone having any medical procedure in a hospital. In the Dr Greene articles, Elisabeth is explaining...