e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
2012 Patient, Caregiver Scholarship Contest for Social Media Summit
Thanks to David Harlow for the heads-up to a contest for scholarships for patients to attend Mayo Clinic's Social Media Summit: Excerpt: The Mayo Clinic Center for Social Media is offering an opportunity for patient advocates to attend its Social Media Summit and...
Marya Zilberberg elaborates on structured vs. nonstructured clinical data
Thanks to member Marya Zilberberg for recounting and elaborating on the list serve discussion about what's best to use for clinical data: structured or unstructured data: http://evimedgroup.blogspot.com/2012/06/unstructured-medical-record-another.html
An Empowered Patient Faces Serious Chronic Disease: How a Strategy of Remaining “Level-Headed” Worked for One Woman
Do you have the ideal healthcare network of individuals supporting your physical, mental, emotional, and spiritual aspects? Sally Richards does. She works with hospitals, neurofibromatosis (NF) organizations, government entities and patients in what she calls “a...
Writer seeks examples of physician conflict of interest that affected care
Our Doc John" Grohol received this inquiry along from a writer who's doing a story about physician conflicts of interest and patient care. If this is of interest to you, please contact the writer directly. Thank you! ____________ I'm writing an article for Neurology...
Writer seeks examples of physician conflict of interest that affected care
Our Doc John" Grohol received this inquiry along from a writer who's doing a story about physician conflicts of interest and patient care. If this is of interest to you, please contact the writer directly. Thank you! ____________ I'm writing an article for Neurology...
Time trip: “Participant-Entrepreneurs: Innovating Toward Better Health” (May 2010)
Susannah Fox's post about this two years ago pretty much went over my head: I didn't get how important it was. But at this month's White House conference on patient-generated data, I met Nikolai Kirienko, who was the central specimen in her post. The start:...
Eve Harris reviews Joe and Teresa Graedon’s book
Thanks to member Eve Harris that pointed our her review of Joe and Teresa Graedon's 2011 book "Top Screwups Doctors Make and How to Avoid Them". From Eve: My blogpost " Better Care, Fewer Worries" links to the SPM monthly intro this way: "I'd like to teach every...
The government seeks patient voices again – this time about info WE put in the record
Shortcut: to respond to this Federal request, go to this post on the government's blog. Update 9 a.m. 6/19: Josh Seidman, author of this post, says there's no specific deadline; these comments will feed into HITPC )the Health IT Policy Committee), which deliberates as...
Regina Holliday announces “Partnership WITH Patients” conference
Yesterday, in an email to our Society's membership, Regina Holliday announced an amazing event that will happen as summer ends. It arose out of an episode with the "Partnership For Patients" program, whose title many of us felt revealed a too-paternalistic attitude....
Who owns your data? Why?
I've received an interesting request: Women Executives in Healthcare, a Hartford professional organization, will hold a meeting this fall themed around "Who owns your data?" And they asked, what are patients' top five issues? Of course I have plenty of opinions, but...
Watson: a love story
Before you read this post, think of a time when you had a crush on someone. Think about that swirl of emotions, the highs and the lows. That’s where I was a couple weeks ago, except it wasn’t about a person. I fell hard for Watson, IBM’s hot new outboard brain. I’d...
Unpacking self-tracking
I tweeted a stat this week which garnered some sharp critiques: 1 in 4 U.S. internet users track their own health data online - @pewinternet pewrsr.ch/khtiMB #healthdata — SusannahFox (@SusannahFox) June 5, 2012 Please help me improve how Pew Internet measures...