e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
A “de-marketing strategy”
J.R. Schmitt tipped me off to a fascinating article published in 1997 (!) about a "de-marketing strategy" for the use of general anesthesia in dentistry in the UK: De-marketing: Putting Kotler and Levy's Ideas into Practice, by Steven Lawther, Gerard B. Hastings, and...
“A growing movement of e-patients”: Hugo Campos on NPR’s Morning Edition & “Shots”
Quick update before I go out and play: SPM member @AfternoonNapper just notified me that two more of us, Katherine Kelly Leon and Sharonne Hayes MD, are also on NPR today! Patients Find Each Other Online To Jump-Start Medical Research I awoke this holiday morning to a...
“Check the box for e-Patient”
From SPM member Keith Boone, author of the e-Patient Rap, whose first verse I did in my TEDx Maastricht talk: My daughter did something interesting a couple of weeks ago when we went to her pediatrician's office. We asked for her records, and she told the clerk to...
Send a message to the White House: Show strength of support for Open Access
Update 1 June 3: if you're not familiar with the Open Access issue, start with Peter Schmidt's comment below, citing a 2008 journal article on the issue, by a former editor of the British Medical Journal. ___________Â Update 2 June 3 @9:50 AM PST: we are only 354...
Cleveland Clinic’s John Sharp with a review of Social Media in Healthcare
Member John Sharp from Cleveland Clinic has a great review of Social Media in Health Care in the last two years. The Society for Participatory Medicine is also mentioned....
What Do Aggregators Know About Me and Why It’s Important
Guest post from SPM member Adrian Gropper, MD of HealthURL.com. Information is the foundation for patient engagement. Nothing about me without me. Although personal medical information starts out with your various institutions and doctors, it doesn’t just stay with...
KQED blog on Hugo Campos and his quest to access his data
KQED blogger and SPM member Eve Harris has written a great brief piece on Hugo's desire to access the data from his implanted defibrillator, beginning: Hugo Campos was apologetic about postponing a scheduled interview with me two weeks ago. In a midday email he wrote,...
Storify feed from Health FOO this weekend
Here's a quick starter note - I hope to say more later. Health FOO is a by-invitation "unconference" from O'Reilly Media and Robert Wood Johnson Foundation this weekend at Microsoft's development center in Cambridge, MA. Â SPM members I've seen so far include past...
HIT Journalist becomes patient advocate after seeing the danger of uncoordinated care and poorly designed workflows
Neil Versel, a HIT journalist, relates a very touching story of his father's care at two different hospitals: one was uncoordinated and prone to errors and near misses, another one was quite a good experience. Unfortunately Neil's father had a rare poorly known...
Hugo Campos has major arrhythmia, goes to ER, wants his data even more now
SPM member Hugo Campos has had much coverage here and in the media (NPR, SF Chronicle, San Jose Mercury-News) for his desire to see the raw data coming out of his implanted defibrillator. The vendor, Medtronic, feels that its responsibility is to give Hugo's doctor...
Is “gimme my damn data” damning to patients?
E-Patient Hugo Campos, whose quest to obtain his medical data has been followed by the media (including this blog) over the past several months, appears in a new interview in SFGate.com. He discusses a common fear of e-patients -- that he may be perceived by...
@Ahier on the AHA’s “it’s too hard”: Planetree hospitals give access while still in-patient
[Reminder: The place to register an official comment to the government is this page on Regulations.gov.] SPM member Brian Ahier is Health IT Evangelist at Mid-Columbia Medical Center in The Dalles, Oregon. Today he posted this on Google+; reposted here with...
