e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Storify feed from Health FOO this weekend
Here's a quick starter note - I hope to say more later. Health FOO is a by-invitation "unconference" from O'Reilly Media and Robert Wood Johnson Foundation this weekend at Microsoft's development center in Cambridge, MA. Â SPM members I've seen so far include past...
HIT Journalist becomes patient advocate after seeing the danger of uncoordinated care and poorly designed workflows
Neil Versel, a HIT journalist, relates a very touching story of his father's care at two different hospitals: one was uncoordinated and prone to errors and near misses, another one was quite a good experience. Unfortunately Neil's father had a rare poorly known...
Hugo Campos has major arrhythmia, goes to ER, wants his data even more now
SPM member Hugo Campos has had much coverage here and in the media (NPR, SF Chronicle, San Jose Mercury-News) for his desire to see the raw data coming out of his implanted defibrillator. The vendor, Medtronic, feels that its responsibility is to give Hugo's doctor...
Is “gimme my damn data” damning to patients?
E-Patient Hugo Campos, whose quest to obtain his medical data has been followed by the media (including this blog) over the past several months, appears in a new interview in SFGate.com. He discusses a common fear of e-patients -- that he may be perceived by...
@Ahier on the AHA’s “it’s too hard”: Planetree hospitals give access while still in-patient
[Reminder: The place to register an official comment to the government is this page on Regulations.gov.] SPM member Brian Ahier is Health IT Evangelist at Mid-Columbia Medical Center in The Dalles, Oregon. Today he posted this on Google+; reposted here with...
Millenson on THCB: Will Regina Holliday Become Health Care’s Rosa Parks?
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] How slowly culture changes. In September 2009, at the founding of our Society for Participatory Medicine, the cover of Health...
Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here's how to become a Society member, individual or corporate. Our publications: This blog...
SPM’s responses to the proposed rules for Meaningful Use Stage 2
Afternoon additions: You too can submit your opinion on the official public comment site. They even allow uploading attachments. As I just told a friend on Facebook: "How often, before this administration, did Washington make it truly easy for anyone to tell their...
International survey for chronic disease patients
Doctoral student Mohamed Chekli met SPM member Matthew Katz MD (radiologist), and asked for help with a survey: Would you please put me in touch with people in your network who are offering personal health records (or patient portals) to individuals dealing with...
“With this the AHA admits that it does not know what an EHR was and is meant for”
Cross-posted from the ICMCC blog, a post by its chairman, Lodewijk Bos, a Dutch cancer patient who is a great advocate for information, technology, and patient engagement. The ICMCC news feed is a terrific daily compilation of health IT news. A long-time advocate for...
Important ONC/NeHC Webinar, noon ET – the Patient’s Role in EHR Data Quality (SPM speaking)
I should have announced this long ago but I've just been too busy for my own good. Go register now! FREE! Attendance is limited to 1,000. (It'll be archived online of course.) Or click the graphic to register: Why this matters: Data quality is important, and it's not...
American Hospital Association declares war on patient empowerment. Please act.
[Reminder: The place to register an official comment to the government is this page on Regulations.gov. Monday May 7 is the last day.] ____________ New, 11pm ET on May 2: See Regina Holliday's addition at bottom. Evening addition: In a comment below, SPM policy chair...