e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
A psychiatrist touts self-care for patients and clinicians
The Journal of Participatory Medicine has published "An Introduction to Self-Care," a personal narrative by psychiatrist Sana Johnson-Quijada. Inspired by a positive family experience with collaborative care, the author was emboldened to modify her communication with...
Mama birds: Catherine Fairchild Calhoun and Laurie Strongin
On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild Calhoun and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy...
Michael Millenson: Will health reform move patient-centeredness to center stage?
Update 12:41 pm: fixed the first link. Michael Millenson, whom we welcomed to SPM in December with his first post here, submits this, about his latest work: How has listening to the patient's voice grown from an ethical demand of the patient rights movement into a...
Robert P. Krause dies, age 90 – was an engaged patient for 85 years
Twitter friend @Scanman submitted this one. Robert Krause was diagnosed with diabetes in 1926, at age 5, shortly after insulin was introduced. What a story of a patient who was engaged in his care - starting at age 6. He died this month, just before turning 91. The...
CostsOfCare.org
We often hear lately that physicians don't KNOW what things cost, and are thus disempowered from helping patients control costs. This item arrived today from The Medical Professionalism Blog, the blog of the ABIMF, the American Board of Internal Medicine Foundation -...
Patients: Your Researcher Will See You Now!
Guest blogger Susan Woods, a physician and SPM board member, urges patients to help shape PCORI's draft National Priorities for Research and initial Research Agenda, and offers her own comments here. The public comment period ends at 11:59 pm EST on March 15. Patient...
The impact of the internet on one man’s life
Nell Minow is a movie critic and corporate governance watchdog (yep, both). She and I were seated together at a luncheon a few weeks ago, part of a weekend-long meeting on leadership. We had just watched the movie, Act of Valor, and began talking about different kinds...
Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This blog...
What’s the future for self-tracking?
Stephen Wolfram’s essay, The Personal Analytics of My Life, begins: “One day I’m sure everyone will routinely collect all sorts of data about themselves.” A Pew Internet survey suggests we have a long way to go: a September 2010 survey found that 27% of internet users...
Nancy Finn interview on Fox News
Nancy has quite a publicist for her book "e-Patients Live Longer," which is spreading the e-patient message... here's an interview with FoxNews.com.
Regina Holliday’s testimony at NCVHS
SPM member Regina Holliday is known for her "Walking Gallery" of painted jackets, each telling one person's healthcare story, which she relates in an accompanying post on her blog. On Tuesday she became the latest e-patient to testify at a meeting of NCVHS, the...
An e-Patient Goes to the Eye Doctor – and, ahem, expresses himself
This was originally posted on my own site. Social media response has said the examples of dialog help people envision how they can express things with their providers. There's a new ending, at bottom. There's nothing here that will be a surprise to any experienced...