e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Getting copies of your medical records: rule & resource info from CDT
The Center for Democracy and Technology (CDT) is one of my favorite sources for accurate information on the rules about our rights to access our medical records. Their wizard Deven McGraw is widely recognized as one of the best authorities anywhere on HIPAA - the 1996...
#firstMRI is a project! Tweetchat tonight
Update 3/23: here's the transcript of the event. Remember December's post about the #firstMRI idea, to help poor unsuspecting patients prepare for the "monkeys banging on garbage cans" experience? It's a project now! Join us for tonight's #s4pm tweetchat at 8 ET / 5...
Former NEJM editors on the corruption of American medicine (NY Times)
This is longer than it might be, because this point is essential. If this subject is familiar to you, skip to the heading "Today's update." As we said in December, an e-patient essential is sorting out what writings to trust, whether we find them online or in print....
Visualize This: An e-Patient’s Medical Life History
The following was originally Katie McCurdy's response to the excellent, ongoing discussion about the future for self-tracking. It's too good not to elevate to a post of its own -- Susannah. ____________________________________________________________________________Â ...
The Government’s Assault on Women’s Health
I'm a little confused... I'm not sure where the U.S. Constitution guaranteed the government's right to interfere with the doctor/patient relationship. Nowhere in this historic document could I find anything about the government's right to dictate how women's health...
Hugo Campos: compelling 3 minute video (Medicine X promo video)
Beyond question, the "gimme my damn data" rock star of 2012 is ICD patient Hugo Campos. (See our past posts about him, including his TEDx Cambridge talk and other media coverage.) I just learned about this well produced short version of his story and his call to...
“Physicians, Patients and the Internet”: good article in Physicians Practice magazine
Associate Editor Aubrey Westgate has a good, solid new piece in the March Physicians Practice magazine about interacting with patients who get engaged with their care by seeking health information on the internet. SPM member Trisha Torrey of Every Patient's Advocate...
A psychiatrist touts self-care for patients and clinicians
The Journal of Participatory Medicine has published "An Introduction to Self-Care," a personal narrative by psychiatrist Sana Johnson-Quijada. Inspired by a positive family experience with collaborative care, the author was emboldened to modify her communication with...
Mama birds: Catherine Fairchild Calhoun and Laurie Strongin
On February 29, 2012, Rare Disease Day, I hosted a conversation with Catherine Fairchild Calhoun and Laurie Strongin, two people who have inspired me in my research about the social impact of the internet on health. They have also inspired me personally, finding joy...
Michael Millenson: Will health reform move patient-centeredness to center stage?
Update 12:41 pm: fixed the first link. Michael Millenson, whom we welcomed to SPM in December with his first post here, submits this, about his latest work: How has listening to the patient's voice grown from an ethical demand of the patient rights movement into a...
Robert P. Krause dies, age 90 – was an engaged patient for 85 years
Twitter friend @Scanman submitted this one. Robert Krause was diagnosed with diabetes in 1926, at age 5, shortly after insulin was introduced. What a story of a patient who was engaged in his care - starting at age 6. He died this month, just before turning 91. The...
CostsOfCare.org
We often hear lately that physicians don't KNOW what things cost, and are thus disempowered from helping patients control costs. This item arrived today from The Medical Professionalism Blog, the blog of the ABIMF, the American Board of Internal Medicine Foundation -...
