e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Patients: Your Researcher Will See You Now!
Guest blogger Susan Woods, a physician and SPM board member, urges patients to help shape PCORI's draft National Priorities for Research and initial Research Agenda, and offers her own comments here. The public comment period ends at 11:59 pm EST on March 15. Patient...
The impact of the internet on one man’s life
Nell Minow is a movie critic and corporate governance watchdog (yep, both). She and I were seated together at a luncheon a few weeks ago, part of a weekend-long meeting on leadership. We had just watched the movie, Act of Valor, and began talking about different kinds...
Monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn. Here's how to become a Society member, individual or corporate. Our publications: This blog...
What’s the future for self-tracking?
Stephen Wolfram’s essay, The Personal Analytics of My Life, begins: “One day I’m sure everyone will routinely collect all sorts of data about themselves.” A Pew Internet survey suggests we have a long way to go: a September 2010 survey found that 27% of internet users...
Nancy Finn interview on Fox News
Nancy has quite a publicist for her book "e-Patients Live Longer," which is spreading the e-patient message... here's an interview with FoxNews.com.
Regina Holliday’s testimony at NCVHS
SPM member Regina Holliday is known for her "Walking Gallery" of painted jackets, each telling one person's healthcare story, which she relates in an accompanying post on her blog. On Tuesday she became the latest e-patient to testify at a meeting of NCVHS, the...
An e-Patient Goes to the Eye Doctor – and, ahem, expresses himself
This was originally posted on my own site. Social media response has said the examples of dialog help people envision how they can express things with their providers. There's a new ending, at bottom. There's nothing here that will be a surprise to any experienced...
Rheumatoid e-Patients Share the Spotlight at Medical Conferences
The Journal of Participatory Medicine has published a narrative by Kelly Young entitled "Present, Patient, and Accounted for: How and Why Patients Are Present at Scientific Meetings of the American College of Rheumatology." Young describes how the Rheumatoid Patient...
An e-Patient Perspective on Stage 2 of Meaningful Use (Adrian Gropper)
At last week's enormous HIMSS (health IT) conference, ONC (the Office of the National Coordinator for health IT) announced the long-awaited rules for Stage 2 of meaningful use. (These are the rules that must be met, for health IT systems to qualify for Federal...
The Power of Rare Disease Patients
I'm honored to post this essay by Wendy White, Founder & President of Siren Interactive: Thanks to the Pew Internet Project, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families) are helping to bring about a...
Health, Technology, and Communities of Color
Serendipity brought me two opportunities this week to present Pew Internet’s data on communities of color and young people, particularly as it relates to health. On Wednesday I was a guest of the Federal HIV/AIDS Web Council and on Thursday I spoke at a meeting...
The Debate Over Patient Access to Lab Results (THCB post from RWJ)
Over on The Health Care Blog, John Lumpkin MD posted a good essay about the proposed ONC rules to let patients automatically see their lab test results. The SGIM Forum (newsletter of the Society for General Internal Medicine) ran a debate about it, and...
