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e-Patients Blog

The blog of the Society for Participatory Medicine. Want to be a contributor?

Innovation, Local Persistence

Innovation, Local Persistence

Innovation is not like switching on a lightbulb for the world. Rather it's local iterative, persistent steps. Thoughts from the Patient Experience Symposium. Listen to the podcast here https://health-hats.com/pod144/ Proem As I left the Patient Experience Symposium in...

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An Introduction to our new Executive Director, Randy Houk

An Introduction to our new Executive Director, Randy Houk

I am so honored and excited to introduce myself to you, SPM Blog readers, SPM members and friends, and to share with you a preview of coming attractions. By that I mean that since I’ve been the new Executive Director for SPM for a day and a half, my vision for what...

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It’s Time to Acknowledge the Invisible Caregivers Among Us

It’s Time to Acknowledge the Invisible Caregivers Among Us

I received an uncharacteristically anxious text from my friend Aileen: “I am having an emergency with my Mom. Please call ASAP.” When I last talked to Aileen, her mother’s dementia had been worsening slowly. A little more confusion, a stovetop left burning after...

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Pay Attention to the Symptoms, but Don’t Ignore the Patient

Pay Attention to the Symptoms, but Don’t Ignore the Patient

Usually, I write from the perspective of a patient advocate diagnosed with Wolfram-like syndrome, a rare disorder of the endoplasmic reticulum that typically manifests first with optic atrophy, then insulin-dependent diabetes. For the purposes of this blog post,...

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The Society for Participatory Medicine’s ePatients blog highlights items of interest to those in the world of e-patients and participatory medicine. Some of our most popular topics include e-patient stories, e-patient resources, problems in healthcare, medical records, news & gossip, patient networks, policy issues, positive patterns, patient/doctor co-care, patients as teachers, reforming healthcare, trends & principles, and why participatory medicine. Our newest blog posts are below. You can also subscribe to our blog via email.

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