e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Medical Devices: Another take on “We want Access to our Damm Data”
Another potent guest post by SPM member Alexandra Albin, @MsAxolotl. If this doesn't give you a sense of who is "the ultimate stakeholder" in health matters, nothing will. Remember, "patient" is not a third person word. Your time will come. A conversation on the SPM...
Hugo Campos on NPR’s “On The Media”
Read to the end... Our man Hugo Campos (see Friday's post) is becoming a media star! TEDx, then MIT Technology Review, now NPR's "On The Media"! From SPM co-founder Joe Graedon, of People's Pharmacy, on the SPM listserv - see also the items below ... ----------...
Hugo Campos at TEDx Cambridge: “Gimme My Damn Data,” Defibrillator Edition
We often say here "Gimme my damn data," referring to our sentiment that data about our health is our data, about us, created for our well-being. And as the saying goes, "Nothing about me without me." And where, we might ask, is that more vital than in the heart? SPM...
Scrubs N Suits posts a good intro to SPM and e-patients
Thanks to Ellen Khalifa at Scrubs and Suits for a nice introduction to SPM, "A Chance to Get behind the Wheel: the Society for Participatory Medicine." http://bit.ly/wFd9Ep "For decades baby boomers have been associated with movements advocating equality, cooperatives...
The Rise of the e-Patient
Lee Rainie, director of the Pew Internet Project, presented this wonderful overview of the Project's health findings at Providence St. Joseph Medical Center in Burbank, CA, on January 12. The Rise of the e-Patient View more presentations from Pew Research Center's...
e-Patient hits the mass media: WBZ Radio and Angie’s List magazine
It's one thing when we "talk amongst ourselves" in our own circles; it's a whole different thing when the message starts popping up in *mass media*, where it reaches people who had no idea. So it's big news that we've had TWO mass-media developments this week with...
Peter Elias: Empowerment and collaboration
Guest blogger Peter Elias, MD, a family physician, raises some interesting questions about the nature of patient empowerment and explores its implications regarding patient-physician collaboration. This piece originally appeared on the author's blog, PeterEliasMD...
OpenNotes helps me prep for a visit
My annual physical is this Friday. Â Since my doctor and I were among the guinea pigs participants in the OpenNotes project, I just got this reminder email: Message Date/Time:Â 1/17/2012 10:00:06 AM Read Date/Time:Â 1/18/2012 7:19:08 AM From:Â OpenNotes, Study...
MIT Media Lab’s Health & Wellness 2012: ten day innovation fest, six us-centered projects
Updated 9:38pm ET - fixed many broken links :-/ I'm spending today (ONLY today, unfortunately) at the MIT Media Lab's third annual Health & Wellness Innovation event. Â It's a two week competition - six teams pursuing some terrific ideas for the most...
Pauline Chen: Getting Patients to Take Charge of Their Health
Quick note as I run to the airport - Last May we reported on a study in process at Emory University about whether a "safety-net" (poor) population would engage with a personal health record. The preliminary results in that poster showed that what predicted patient...
Open knowledge saves lives. Oppose H.R. 3699!
Note: Although currently not a member of the SPM, I have been involved, since its inception, with Tom Ferguson and others, in the creation of the e-patients white paper . I am also one of the co-founders of the SPM and one of the volunteers who created the...
Gloucester Times: Taking control of our own care in today’s health maze
