e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
e-Patient hits the mass media: WBZ Radio and Angie’s List magazine
It's one thing when we "talk amongst ourselves" in our own circles; it's a whole different thing when the message starts popping up in *mass media*, where it reaches people who had no idea. So it's big news that we've had TWO mass-media developments this week with...
Peter Elias: Empowerment and collaboration
Guest blogger Peter Elias, MD, a family physician, raises some interesting questions about the nature of patient empowerment and explores its implications regarding patient-physician collaboration. This piece originally appeared on the author's blog, PeterEliasMD...
OpenNotes helps me prep for a visit
My annual physical is this Friday. Â Since my doctor and I were among the guinea pigs participants in the OpenNotes project, I just got this reminder email: Message Date/Time:Â 1/17/2012 10:00:06 AM Read Date/Time:Â 1/18/2012 7:19:08 AM From:Â OpenNotes, Study...
MIT Media Lab’s Health & Wellness 2012: ten day innovation fest, six us-centered projects
Updated 9:38pm ET - fixed many broken links :-/ I'm spending today (ONLY today, unfortunately) at the MIT Media Lab's third annual Health & Wellness Innovation event. Â It's a two week competition - six teams pursuing some terrific ideas for the most...
Pauline Chen: Getting Patients to Take Charge of Their Health
Quick note as I run to the airport - Last May we reported on a study in process at Emory University about whether a "safety-net" (poor) population would engage with a personal health record. The preliminary results in that poster showed that what predicted patient...
Open knowledge saves lives. Oppose H.R. 3699!
Note: Although currently not a member of the SPM, I have been involved, since its inception, with Tom Ferguson and others, in the creation of the e-patients white paper . I am also one of the co-founders of the SPM and one of the volunteers who created the...
Gloucester Times: Taking control of our own care in today’s health maze
Jessie Gruman’s “Lessons from the Year of Living Sick-ishly”
Regular readers know that last year Jessie Gruman of the Center for Advancing Health was treated for her fourth cancer. (Knock it off, willya??) (Diagnosis post here...
JoPM: A Doctor’s Remedy for Long Waits
A new article in the Journal of Participatory Medicine tackles the problem of long wait times at doctors' offices, a leading cause of patient dissatisfaction. "Waiting Room Remedy: Doctor Pays for Delays (The Doctor's Perspective)" by Pamela Wible, MD offers a...
HBR blog: “The trouble with treating patients as consumers”
Edited a few minutes after the original post. Over on the Harvard Business Review blog a post yesterday is stirring up discussion. I hope well-informed SPM members can help shed some light in the comments there, citing as many specifics as you can. (As I compiled the...
Ileana Balcu: The marriage of HIT with quality, transparency and cooperation between patients and doctors
In the latest post in our Why I Joined SPM series, guest blogger Ileana Balcu shares her story of pain, searching, and finally healing, once she discovered the e-patient community. Follow her on Twitter at @yogileana. It was 2002 and I was happily pregnant. I thought...
GeekDoctor’s wife, newly diagnosed, gives Cancer 101’s Cancer Planner high marks
I just learned that the organization of SPM president-elect Sarah Krug, Cancer 101, has gotten what I consider a major acknowledgement. On his blog GeekDoctor.blogspot.com, John Halamka announced last month that his wife Kathy was newly diagnosed with breast cancer....
