e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
“The Office” Takes on Primary Care
Not really, but check out this new campaign by the Puget Sound Health Alliance aimed at getting the employees of their purchaser members (businesses and labor union trusts) to make better use of primary care. These videos* will make you chuckle / guffaw / giggle even...
“The Participation Hypothesis”
Found in the August 24/31 issue of the Journal of the American Medical Association: A quote from Herbert A. Simon (1916-2001): "Significant changes in human behavior can be brought about rapidly only if the persons who are expected to change participate in deciding...
“Who Can Fix Health Care?” Al Mulley’s talk at TEDx Dartmouth
Stop what you're doing, as soon as possible, and spend 20 minutes watching this. It's the most powerful short talk I've ever seen about health care. Our e-patient white paper is titled "e-Patients: How they can help heal healthcare." In this talk from March's TEDx...
JoPM recommendation: “Team Up for Health”
The Journal of Participatory Medicine has just published a Media Watch piece about a new initiative from the California HealthCare Foundation called Team Up for Health. This website is a good example of an online tool that helps primary care providers support patients...
A “shopping for healthcare” blog
Anytime Susannah Fox tweets "I am fascinated by...," I stop what I'm doing and click. Today it's this: "I am fascinated by this healthcare costs blog: healthcaresavvy.wbur.org Thanks @agropper @WBUR @stephenjdowns." It's on the site of WBUR, Boston's public radio...
Health Literacy Missouri: Clarity is Power.
I'm visiting yesterday and today with some marvelous kindred spirits: Health Literacy Missouri (Twitter @HealthLitMo, Facebook). Their thoughts are very aligned with participatory medicine. It's like we've been ships in the night - not crossing in the night, but...
JoPM book review: “Out of Her Mind”
The Journal of Participatory Medicine has just published a review of "Out of Her Mind: Women Writing on Madness." Writer Meredith Linden, who lives with bipolar disorder, describes how the selections in this book can help validate people struggling with mental...
How about PHR = *Portable* Health Record?
I'm at the second face-to-face meeting of the Consumer Consortium of the National eHealth Collaborative, a gathering of 180+ stakeholder groups working on the consumer engagement aspect of health IT. Everyone talks about PHRs as Personal Health Records, but one...
Social media, patients, and physicians: a sticky wicket
Social media is well established in our society and it shows much promise as a tool of patient-physician communication. But despite some cases of good and enriching rapport between patients and physicians in social media, the medical world, on the whole, is still...
Communication, A Vital Skill for Participatory Medicine
Guest post by SPM member Nancy B. Finn, author of the forthcoming book e-Patients Live Longer: The Complete Guide to Managing Your Health Using Technology. Participatory medicine depends on the availability of health information to all members of a care team....
NOT an e-patient: freaks out at the first search result
An SPM member [name redacted - wishes to remain anonymous :–)] emailed this, with the playful subject line "A New e-Patient": (Click the image to go to the high-res on the comic's site; © Copyright 2011 King Features Syndicate, all rights reserved.) Funny comic, but...
Twenty years ago today: “The WWW Project aims to allow links…”
O'Reilly Media's Alex Howard, who tweets as @Digiphile, dropped this gem in the stream today: "1991: "The WWW project aims to allow links to be made to any information anywhere"-@timberners_lee http://j.mp/r8bckt /HT @Zee" Well that's a link you gotta click, if you're...
