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e-Patients Blog

The blog of the Society for Participatory Medicine. Want to be a contributor?

Smashing myths & assumptions on PHR use (Chilmark)

John Moore of Chilmark Research has another great post, this time on the realities being discovered about PHR use among the urban poor - something most observers considered unlikely. It's aptly titled Smashing Myths & Assumptions: PHR for Urban Diabetes Care. Give...

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On Veterans Day: Inspiration

Necessity is the mother of invention.  I have been profoundly moved over the past few months by a handful of people who have been forced to live this idiom or who have stepped up to the challenge of aiding wounded warriors. In honor of Veterans Day,  please take a...

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Day 1 of TEDMED: Charity Tillemann-Dick, e-patient

Update Jan. 18: the video has just been released - see it at the bottom of this post. TEDMED is a truly extraordinary conference in San Diego, a fall sibling of TED talks focused on medicine. TED talks are just 18 minutes long, chosen and designed to blow your mind....

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How One Cancer Center Lets Patients Call the Shots

Guest post by Erin Macartney (Twitter) of Palo Alto Medical Foundation. We would welcome similar posts from providers (or anyone else) who's illustrating what we advocate in the Society for Participatory Medicine: truly patient-centered care, in which "networked...

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Why can’t medical records have basic Wikipedia features?

I'm at the Connected Health conference, and more than once the question has come up: if patients have access to editing the medical record, will chaos break out? I keep thinking: Free and low-cost cloud collaboration systems can track who entered something and who...

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Texas Tribune: David Blumenthal on EHR

Texas Tribune interviewed Dr. David Blumenthal, National Coordinator of Health Information Technology, for a discussion of healthcare digital convergence (i.e. transition to electronic/digital healthcare records) and the potential impact on patient privacy. He's...

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Fixing Those Damn Lies

A new commentary on “Lies, Damned Lies, and Medical Science,” in the current issue of The Atlantic Monthly. [See also our previous post on the article, with dozens of comments, some of them excellent. And be sure to read Peter's footnotes. -e-Patient Dave]...

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The Society for Participatory Medicine’s ePatients blog highlights items of interest to those in the world of e-patients and participatory medicine. Some of our most popular topics include e-patient stories, e-patient resources, problems in healthcare, medical records, news & gossip, patient networks, policy issues, positive patterns, patient/doctor co-care, patients as teachers, reforming healthcare, trends & principles, and why participatory medicine. Our newest blog posts are below. You can also subscribe to our blog via email.

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John M. Grohol, Psy.D.

Dr. John M. Grohol, Psy.D. is a psychologist and technologist who specializes in examining and writing about the confluence of patient rights, technology, and mental health. In 1995, he founded Psych Central, the world's leading independent mental health site overseen by mental health professionals, which was acquired by Healthline in 2020. He founded and continues to oversee the independent online support group community for mental health concerns, My Support Forums since 2001. He is a co-founder of the Society for Participatory Medicine.

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