e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Who *are* those guys? (Matt Wiggins and Remedy Systems)
How many times have you been at a conference, listening to some panel, when all of a sudden someone says something that snaps you out of your stupor and you think, "Who *is* that guy?" (And if you're lucky enough to remember Butch Cassidy and the Sundance Kid, please...
AMIA board: “Hold harmless” clause in EMR contracts is unethical
Update the next afternoon: be sure to read the comments, with important updates as the conversation continues. Bulletin - I just learned about this tonight: Last Friday the board of the American Medical Informatics Association (AMIA) published a position paper in its...
Smashing myths & assumptions on PHR use (Chilmark)
John Moore of Chilmark Research has another great post, this time on the realities being discovered about PHR use among the urban poor - something most observers considered unlikely. It's aptly titled Smashing Myths & Assumptions: PHR for Urban Diabetes Care. Give...
Disruptive Women in Healthcare video: Health Reform after the Mid-Terms
Last week, the morning after the mid-term elections, the Disruptive Women in Health Care blog co-hosted an event at the National Press Club to discuss the election's impact on health reform. They've just posted the video of the first hour's panel, with several sharp...
Busting the paradigm about mobile for health: it’s not just phones and browsers. (Morgan Stanley, April 2010)
Previous title: "Morgan Stanley, April 2010: Mobile will be bigger than desktop. Discuss, re health." Thanks to @Rohal and others for tweeting about a talk on internet* trends Tuesday by Mary Meeker of investment banker Morgan Stanley, at their Future of Media...
On Veterans Day: Inspiration
Necessity is the mother of invention. I have been profoundly moved over the past few months by a handful of people who have been forced to live this idiom or who have stepped up to the challenge of aiding wounded warriors. In honor of Veterans Day, please take a...
DC seeks citizen input (YOUR input) on health IT policy. Comment now!
Josh Seidman is in charge of Meaningful Use at the Department of Health and Human Services. (Meaningful Use refers to the guidelines for how providers should use electronic medical records.)Â He wants input from us - that's you: ONC is eager to get as much public...
To improve health and health care faster… (fill in the blank)
I was honored to be invited to TEDMED by the Pioneer Portfolio of the Robert Wood Johnson Foundation. Their team encouraged all attendees to complete one of three sentences: "To improve health and health care, we need to start asking..." "To improve health and health...
TEDMED on owning death: Sekou and Steve perform, Alexandra Drane on Engage With Grace
We talk a lot here about taking, owning, or reclaiming responsibility for our health and its care. If we ever update the e-patient white paper I want to include an area where we're sometimes robbed of control at the most intimate time: death, and the months and years...
Day 1 of TEDMED: Charity Tillemann-Dick, e-patient
Update Jan. 18: the video has just been released - see it at the bottom of this post. TEDMED is a truly extraordinary conference in San Diego, a fall sibling of TEDÂ talks focused on medicine. TED talks are just 18 minutes long, chosen and designed to blow your mind....
How One Cancer Center Lets Patients Call the Shots
Guest post by Erin Macartney (Twitter) of Palo Alto Medical Foundation. We would welcome similar posts from providers (or anyone else) who's illustrating what we advocate in the Society for Participatory Medicine: truly patient-centered care, in which "networked...
Why can’t medical records have basic Wikipedia features?
I'm at the Connected Health conference, and more than once the question has come up: if patients have access to editing the medical record, will chaos break out? I keep thinking: Free and low-cost cloud collaboration systems can track who entered something and who...
