e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
How One Cancer Center Lets Patients Call the Shots
Guest post by Erin Macartney (Twitter) of Palo Alto Medical Foundation. We would welcome similar posts from providers (or anyone else) who's illustrating what we advocate in the Society for Participatory Medicine: truly patient-centered care, in which "networked...
Why can’t medical records have basic Wikipedia features?
I'm at the Connected Health conference, and more than once the question has come up: if patients have access to editing the medical record, will chaos break out? I keep thinking: Free and low-cost cloud collaboration systems can track who entered something and who...
Texas Tribune: David Blumenthal on EHR
Texas Tribune interviewed Dr. David Blumenthal, National Coordinator of Health Information Technology, for a discussion of healthcare digital convergence (i.e. transition to electronic/digital healthcare records) and the potential impact on patient privacy. He's...
Fixing Those Damn Lies
A new commentary on “Lies, Damned Lies, and Medical Science,” in the current issue of The Atlantic Monthly. [See also our previous post on the article, with dozens of comments, some of them excellent. And be sure to read Peter's footnotes. -e-Patient Dave]...
Twitter: filter, suggestion box, idea machine, window
On Friday I dashed off this tweet: PhD student just asked me which journals I read to stay up to date on health + tech. My answer: Twitter. It was classic RT bait and indeed it was echoed dozens of times by fellow Twitter geeks -- more than any other tweet I've...
Atlantic: Lies, Damned Lies, and Medical Science
There's an extraordinary new article in The Atlantic, "Lies, Damned Lies, and Medical Science." It echos the excellent article in our Journal of Participatory Medicine (JoPM) one year ago this week, by Richard W. Smith, 25 year editor of the British Medical Journal:...
No social network Rx? Malpractice!
Because I’m a doctor and I know a lot of people in the health care space, people ask me all the time for referrals. A friend with a newly diagnosed autoimmune disease, a loved one with a terrifying cancer sentence - who should I talk to?? I used to depend on the...
First Annual Society for Participatory Medicine Cocktail Reception
We welcome members to join us for the First Annual Society for Participatory Medicine Cocktail Reception taking place on Oct 19th at the Liberty Hotel (http://www.libertyhotel.com) from 6-8pm. We invite you to share your ideas and enjoy a wine bottle service, hors...
Participatory Medicine Grand Rounds
This is e-Patients.net's first opportunity to host Grand Rounds, which is a collection of some of the medical blogosphere's best writing over the last week. We asked bloggers to look at our sister website, the peer-reviewed Journal of Participatory Medicine, and...
Constant Beta vs. Evidence-Based Policy: Tension in the Data Continuum
I chose Lawrence Green's article "The Field-Building Role of a Journal About Participatory Medicine and Health, and the Evidence Needed" for the Participatory Medicine Grand Rounds, because it addresses the issues at the heart of the deep impact of the network effect...
Building a Research Agenda for Participatory Medicine
For this Grand Rounds, I chose David C. Kibbe & Joseph C. Kvedar's article, "Building a Research Agenda for Participatory Medicine" (JoPM, Vol. 1, 2009). I will highlight two of their "ready-to-go" research questions: What is the role of coaching in sparking and...
e-Patients.net hosts Grand Rounds
e-Patients.net is hosting Grand Rounds next Tuesday, October 12. We're asking this week's Grand Rounds bloggers to create posts inspired by, supportive of, or critical of articles in the Journal of Participatory Medicine. We have a great reason for focusing on the...
