e-Patients Blog
The blog of the Society for Participatory Medicine. Want to be a contributor?
Essential e-patient topic: understanding the challenges of pathology and diagnosis
Two posts have brought into wrenching relief one of the more difficult topics I've encountered in healthcare: the challenge of understanding diagnosis, especially when difficult pathology is involved. It started with When a biopsy cannot completely rule out cancer, a...
“Give Us Our Dammed Data” – Regina Holliday
17 authors with weapons in hand stare down upon the viewer. The three panel painting measures 60 inches by 144 inches. It is a very large painting, and yet it is crowded with those who have been hurt and those who have suffered. Every one of them is an author. Nearly...
Majority of consumers use social networks to influence buying decisions (Gartner)
A majority of consumers' buying decisions are influenced by social networks, according to a new study from research firm Gartner, says ReadWriteWeb. Three types of key influencers (20% of users) are heeded by 74% of all consumers. We'd like to see this analysis...
Why Mark Boguski joined the Society for Participatory Medicine
Next in our series, Mark Boguski, MD, PhD is both a personal and a corporate member, as co-founder with Dr. Alan Littleford of ResoundingHealth. If you'd like to submit your own reason, write to me. (This is not an "invitation only" series - that wouldn't be like us!...
Moving the mountain: Producing evidence and results on methods for better care
I ran across a graphic today that warmed my heart: Recognize that agenda? (Click to enlarge if you want more clarity.) Sure is a lot of what we've discussed. Pie in the sky, tough hill to climb, nice idea but not feasible, right? Wrong. Thursday I'm at a quarterly...
Dear White House: The Personal Data Challenge
Gary Wolf of Wired has posted a whizbang write-up that came out of a whirlwind one-hour 12-way Skype chat about personal health data. Sound frenetic? It was. (I participated. It was, well, 12-way.) I can't imagine how to model what happened, except to say that it was...
Initial OpenNotes report: project description and baseline attitude survey
Participate in a public survey here at the OpenNotes project website: what do you think will happen when notes are made visible to patients? Five weeks ago we wrote about the start of the OpenNotes project, funded by Robert Wood Johnson Pioneer Portfolio. The...
CMS slides from the Meaningful Use rules announcement
At last Tuesday's announcement of the Meaningful Use rules, many people asked for the slides. After going through clearances, they arrived today. Click for 44 page PDF (649k). Correction 12:19pm ET 7/19: the PDF has been replaced with a PowerPoint, which we uploaded...
Susannah Fox on BBC’s “Americana” on US mobile internet usage
Susannah Fox of the Pew Internet and American Life project was on BBC Radio's "Americana," with Megan McCarthy, editor of TechMeme. (You know she's wicked cool because her Twitter ID is just @Megan.) Topic: mobile internet usage in America. The recording is here....
Laugh, Sing, and Eat Like a Pig
e-Patient Dave's book, Laugh, Sing, and Eat like a Pig, is out! Mark Graban captures the health geek excitement: The best writers make you feel like you're spending time with a wise friend -- add some tears and laughs and you have Dave's book. I wasn't there for his...
Crowdsourcing a Survey: Health Topics
The Pew Internet & American Life Project will soon go into the field with our next health survey and we need your help. One of our core findings (8 in 10 internet users, or about two-thirds of U.S. adults, look online for health information) is based on a series...
HHS posts Consumer e-Health job. Apply by 8/16.
Josh Seidman, Director of Meaningful Use, sent this. It's for a two year full time job in DC, possibly extendable. No relocation costs will be paid - you're on yer own. :–) From what I hear, talking to people working in HHS these days, "full time" is an...
