by e-Patient Dave | Dec 18, 2009
Cross-posted, with prolog, from the blog of Ted Eytan MD. Yesterday the Institute for Healthcare Improvement’s “WIHI” series hosted a terrific webcast on the Open Notes project that’s being funded by the Robert Wood Johnson Foundation. (I need...
by e-Patient Dave | Dec 15, 2009
Yesterday I attended “How Access to Information Can Empower Patients and their Caregivers,” conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the National Partnership for Women and Families. It has no...
by e-Patient Dave | Nov 15, 2009
An important study just got my attention. Patients and clinicians in different cities were asked questions about concerns and preferences. Titled “Insights for Internists: ‘I Want the Computer to Know Who I Am’,” the study reports: (emphasis added)...
by e-Patient Dave | Sep 12, 2009
We’ve written here before about Regina Holliday (follow her blog), whose husband Fred died June 17. In today’s edition of the British Medical Journal, her mural is the picture of the week: Ted Eytan MD took the picture and posted it on Flickr. Today he...
by Gilles Frydman | Sep 22, 2008
Why have rare diseases been so disproportionally represented in the world of internet-based online medical communities since the early 90s? Is there a unique reason to explain why so many of the rare disease patients understood long before anyone else the importance...
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