Transparency Archives - Page 2 of 3

Why asking what treatment will cost matters

by e-Patient Dave | Sep 10, 2012

In yet another terrific discussion on our members’ listserv, Casey Quinlan of Mighty Casey Media (Twitter @MightyCasey, @CancerForXmas) gave powerful voice to a patient’s perspective on controlling medical costs. I asked her to write it up. Go, Casey!...

Healthcare.gov goes live: terrific site on health coverage options

by e-Patient Dave | Jul 2, 2010

This week the Department of Health & Human Services (HHS) introduced Healthcare.gov, a consumer information website mandated by the Affordable Care Act (aka the health reform bill). A video of the introduction meeting is here. The site is fabulous; HHS Chief...

Participant-Entrepreneurs: Innovating Toward Better Health

by Susannah Fox | May 13, 2010

Nikolai Kirienko, Crohnology.MD Project Director, is setting a new standard for transparency in research and innovation as he blogs about his work with Project HealthDesign: On days where I could have benefited from the feedback of [Observations of Daily Living] the...

Tell HHS: What’s the role of patient generated data in Meaningful Use?

by e-Patient Dave | Apr 14, 2010

Next Tuesday Regina Holliday and I are among those testifying to the Health IT Policy Committee’s workgroup on Meaningful Use. Please help me decide what to submit for my testimony. My session is Panel 2: Incorporating Patient-Generated Data in Meaningful Use...

Superheroes and rock stars at the Institute of Medicine

by Susannah Fox | Oct 14, 2009

Update: National Cancer Policy Forum published a book based on the workshop, A Foundation for Evidence-Based Practice: A Rapid Learning System for Cancer Care, which you can buy, read online for free, or download as a PDF. The discussion portion of this panel was...