About Us

The Society for Participatory Medicine is a 501(c)3 public charity devoted to promoting the concept of participatory medicine by and among patients, caregivers and their medical teams and to promote clinical transparency among patients and their physicians through the exchange of information, via conferences, as well through the distribution of correspondence and other written materials.
The Society aims to advance the understanding of physicians and other professionals in the importance of well-informed, empowered and engaged patients making informed decisions about their care and treatment; to foster communication among medical, communication, patient advocacy and public health sub-specialties and the exchange of a wide range of ideas related to participatory medicine; to support informational and other research programs of the highest quality in participatory medicine; and to proactively minimize the effect of the digital divide in the development of participatory medicine in minorities and disenfranchised populations by providing information to patients through the distribution of informational materials and correspondence, amongst other activities.
The Society supports numerous activities to help promote participatory medicine and the e-patient movement. These activities include:
- The Journal of Participatory Medicine
- Our e-Patients.net blog
- Speaking at conferences and events to spread the message about participatory medicine
- Additional ongoing participatory medicine outreach and educational efforts
To learn more about us, please consult the links on the right-hand menu.
- Hugo Campos has major arrhythmia, goes to ER, wants his data even more now--e-Patient Dave
- Is “gimme my damn data” damning to patients?--Kathleen O'Malley
- @Ahier on the AHA’s “it’s too hard”: Planetree hospitals give access while still in-patient--e-Patient Dave
- Millenson on THCB: Will Regina Holliday Become Health Care’s Rosa Parks?--e-Patient Dave
- Medication Errors Result from Current Medication Reconciliation Practices: It’s Time to Adopt Participatory Reconciliation
- What Is the Heart of Health Care? Advocating for and Defining the Clinical Relationship in Patient-Centered Care
- Another Mental Health Professional Shares Her “Self-Care” Story
- Making Every Second Count – What We Can Do As Patients






