The Society for Participatory Medicine is a 501(c) 3 is a not-for-profit organization devoted to promoting the concept of participatory medicine, a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.
The Society seeks to bring together all of the stakeholders in healthcare (patients, caregivers, healthcare professionals, payers, and others) to encourage collaboration, communication and cooperation that will foster provider/patient engagement, patient empowerment and education.
This partnership of cooperation is enhanced with the Society’s Four Pillars:
Provide a participatory medicine forum for collaborative research exchange and evidence based practice project collaboration.
Provide resources, reference tools and best practice standards that support participatory medicine.
Ongoing work with government officials, policy-making bodies, patient advocacy organizations to foster the ideals of participatory medicine.
Encourage collaboration and networking among members and organizations who are ambassadors for the participatory medicine movement.
- Researcher seeks patient input: what should a stent decision aid include?--Marilyn Mann
- Let’s crowdsource what a “good” medical record tool for patients is (and list some products)--e-Patient Dave
- Recently in JoPM: Jessie Gruman tribute, book review on asthma--e-Patient Dave
- Communicating the experience of illness in the digital age--Susannah Fox
- A Tribute to Jessie Gruman, Founding JoPM Co-Editor
- Book Review: A Cure for Asthma? What Your Doctor Isn’t Telling You — And Why
- The Challenges of Conceptualizing Patient Engagement in Health Care: A Lexicographic Literature Review
- Lessons Learned from Implementing a Multi-Year, Multi-Project Public Engagement Initiative to Better Inform Governmental Public Health Policy Decisions