The Society for Participatory Medicine is a 501(c) 3 not-for-profit organization devoted to promoting the concept of participatory medicine, a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.
- To guide patients and caregivers to be actively engaged in their health and health care experiences.
- To guide health professional practices where patient experience and contribution is an integral goal of excellence.
- To encourage mutual collaboration among patients, health professionals, caregivers and others allowing them to partner in determining care.
The Society seeks to bring together all of the stakeholders in healthcare (patients, caregivers, healthcare professionals, payers, and others) to encourage collaboration, communication and cooperation that will foster provider/patient engagement, patient empowerment and education.
This partnership of cooperation is enhanced with the Society’s Four Pillars:
Provide a participatory medicine forum for collaborative research exchange and evidence based practice project collaboration.
Provide resources, reference tools and best practice standards that support participatory medicine.
Ongoing work with government officials, policy-making bodies, patient advocacy organizations to foster the ideals of participatory medicine.
Encourage collaboration and networking among members and organizations who are ambassadors for the participatory medicine movement.
- Dell Medical School and the Future of Care--Jon Lebkowsky
- Participatory Personalized Medicine in Action: Pharmacogenomics in Primary Care--Ileana Balcu
- Diabetes patient leaders: apply by 2/15 for fully funded #MasterLab Leadership Institute--e-Patient Dave
- Precision Medicine For Me (a new open collaboration) launches at #PMWC17--e-Patient Dave
- A Framework for Designing Digital Health Tools with Empathy
- Electronic Screening to Increase Identification of Risk: Lessons Learned in the Implementation of an mHealth Risk Assessment Strategy in an Urban Primary Care Environment
- Use of Conjoint Analysis to Determine Patient Preferences for Surgical Treatment of Urethral Stricture Disease
- Exploring Self-Tracking as a Participatory Research Activity Among Women with Endometriosis