The Society for Participatory Medicine is a 501(c) 3 not-for-profit organization devoted to promoting the concept of participatory medicine, a movement in which networked patients shift from being mere passengers to responsible drivers of their health, and in which providers encourage and value them as full partners.
- To guide patients and caregivers to be actively engaged in their health and health care experiences.
- To guide health professional practices where patient experience and contribution is an integral goal of excellence.
- To encourage mutual collaboration among patients, health professionals, caregivers and others allowing them to partner in determining care.
The Society seeks to bring together all of the stakeholders in healthcare (patients, caregivers, healthcare professionals, payers, and others) to encourage collaboration, communication and cooperation that will foster provider/patient engagement, patient empowerment and education.
This partnership of cooperation is enhanced with the Society’s Four Pillars:
Provide a participatory medicine forum for collaborative research exchange and evidence based practice project collaboration.
Provide resources, reference tools and best practice standards that support participatory medicine.
Ongoing work with government officials, policy-making bodies, patient advocacy organizations to foster the ideals of participatory medicine.
Encourage collaboration and networking among members and organizations who are ambassadors for the participatory medicine movement.
- OpenNotes study in BMJ Quality & Safety finds patient-doctor “relational benefits”--e-Patient Dave
- #OpenAPS is bearing big fruit, part 2: Quantified Self presentation in San Diego--e-Patient Dave
- #OpenAPS is bearing big fruit, part 1: Dana Lewis’s speech at O’Reilly’s OSCON--e-Patient Dave
- Jody Schoger, co-founder of #BCSM breast cancer community, has passed--e-Patient Dave
- Community-Academic Partnership: Identifying Patient Perceptions Related to Obesity in a Spina Bifida Population
- Selecting Quality Indicators in Child and Adolescent Mental Health Care: A “Stakeholder-Driven” Approach
- International Workshop on Infrastructures for Health Care: Patient-Centered Care and Patient Generated Data
- Understanding Parent Perspectives Concerning Adolescents’ Online Access to Personal Health Information