by Nancy Finn | Feb 13, 2014
The ability to write something meaningful in140 characters, including a shortened URL, is the basis of Twitter. Over 500 million tweets go out every day to individuals who enjoy the simplicity, functional design, and speed of delivery that twitter offers, along with...
by e-Patient Dave | Feb 11, 2014
Edited an hour later – I had the wrong French speaking e-patient! On Facebook today Christine Bienvenu @TinaBurger posted this news on my timeline: … with the help of a Swiss colleague who works at the Geneva University Hospitals we were able to get the...
by David Harlow | Feb 4, 2014
The lab test result data access rule is finally final. See the HHS press release and the final rule, which is scheduled to be published on Thursday. What does this mean? In a nutshell, patients in all 50 states are now guaranteed the right to access the results of...
by Casey Quinlan | Feb 3, 2014
For e-patients and others who list themselves on Texas Medical Institute of Technology’s SpeakerLink, this very meaty post by Society of Hospital Medicine founder and world-renowned leader of the hospitalist movement Dr. Bob Wachter is required reading. After...
by e-Patient Dave | Feb 1, 2014
This is our monthly introduction to e-Patients.net, blog of the Society for Participatory Medicine. Follow the Society on Twitter (@S4PM), Facebook, and LinkedIn.  Here’s how to become a Society member, individual or corporate. Our publications: This...
by e-Patient Dave | Jan 30, 2014
Prolog by e-Patient Dave: “Patients Included” was created by Lucien Engelen in the Netherlands for his initiative to have patients speak at all medical events. We in the patient community are taking it everywhere we can. But sometimes – as in this...
by e-Patient Dave | Jan 25, 2014
Here’s a new “must read” for people with a grim prognosis, submitted by Twitter friend @Scanman (Vijay Sadasivam), from the Tamil region of India: How Long Have I Got Left?, by Stanford neurosurgeon Paul Kalanithi. Seven years ago that was my...
by Nick Dawson | Jan 23, 2014
This post originally appeared on NickDawson.net here. Spoiler alert: I’m not dying and there doesn’t appear to be anything major wrong with me. I know, you hate spoilers. But I thought I’d get that one out of there way. It makes the rest of this considerably...
by e-Patient Dave | Jan 21, 2014
For U.S. residents –Â I spoke last month at a health price transparency conference in Washington, sponsored in part by Robert Wood Johnson Foundation. In a side session we saw presentations by the winners of the Health 2.0 Developer Challenge for shopping...
by Ileana Balcu | Jan 14, 2014
Our member Keith Boone with a great explanation of what to do when a provider’s office gives you the “I can’t do this because of HIPAA” about giving you your records:...
by Ileana Balcu | Jan 14, 2014
In this guest blog post, member Carly Medosch describes Lisa Adams whom she knows from social media. Lisa Adams was diagnosed with stage 4 breast cancer and documented her journey in social media. In another post below we describe the media firestorm that was caused...
by e-Patient Dave | Jan 13, 2014
Update 9:20 pm ET: see important additions at the subhead below. When I wrote this today I didn’t have time to dig for excellent links like those. Thanks to Susannah Fox’s Twitter feed. One of the best social media patient figures I met, long ago, was...
by Nancy Finn | Jan 3, 2014
In 2014, the baby boomers (individuals born between 1946 and 1964) will turn 65 at a rate of nearly 10,000, individuals a day. Over the next five years 17 million baby boomers turn 65. That’s a lot of people retiring, joining the Medicare system developing chronic...
by e-Patient Dave | Jan 1, 2014
The next day I made a correction per Dick Morris’s comment, and toned down some of my adjectives to be more suitable outside of our private listserv. Dr. Bratton, of course we welcome dialog. In our Society for Participatory Medicine, part of our work is to...
In Memory of Nancy Finn: e-Patient, Advocate, Author, SPM SupporterJuly 16, 2025
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
Recent Comments