by Ileana Balcu | Apr 3, 2014
By Mark Branning and Brad Tritle Mark Branning is Principal at mdb Healthcare IT Solutions, Adjunct Professor at National University, a member of the HIMSS Connected Patient Committee and co-chair of the Connected Patient Community. Mr. Branning has spent 33 years...
by Ileana Balcu | Apr 2, 2014
Our Member Beth Nash MD recommends this article: This is an incredible article in BMJ Quality & Safety about how patients, families and professionals can (and need to) work together to improve care (in this case, the care of cystic fibrosis patients). Here’s...
by David Harlow | Mar 27, 2014
A Perspectives piece I wrote was published this week by iHealthBeat – Unlocking the Power of Health Data. In it I argue for patient-controlled sharing of rich data, as opposed to HIPAA-regulated stripping of identifiers in order to eliminate the risk to patient...
by e-Patient Dave | Mar 27, 2014
The Society for Participatory Medicine enthusiastically supports this new, transformational initiative from the Robert Wood Johnson Foundation: Flip the Clinic. (Don’t you love the logo? Turning the clinic on its ear?) It’s utterly engaging and empowering...
by e-Patient Dave | Mar 26, 2014
It’s five years since the ARRA/HITECH legislation was passed that pretty much mandates that American medicine has to computerize. Policies created since then have been enormously effective at moving adoption forward. We still need vast improvements of the user...
by e-Patient Dave | Mar 26, 2014
Last week SPM member Erin Moore (see her previous posts) handled an opportunity in Washington really effectively, and she got heard. Here’s a cross-post of her news, with permission, from her blog 66 Roses. ______________ Last week I traveled to Washington, DC...
by e-Patient Dave | Mar 25, 2014
Five years ago last week, I posted this. A lot has changed since then. Next week I’ll be re-posting what happened next, back then. The subject is still just as valid, so do think about it. Here’s a “reprint”: _________________ I want you to...
by Nancy Finn | Mar 23, 2014
Approximately 98 % of the world’s population are now owners of cellphones, including many adults in remote, hard to reach locations. This proliferation of mobile devices has the potential to improve our ability to diagnose and track disease; to tackle and...
by e-Patient Dave | Mar 21, 2014
This isn’t directly related to participatory medicine per se, but for students of the social web and “health is social” factors, this will be fascinating and important. (In my speaking work, it’s always useful to cite new research that sheds...
by Nick Dawson | Mar 13, 2014
I now ask all my patients, at the end of our visits, “Did I get it? Did I successfully answer your questions and address your fears?” Dr. Marc Katz is a cardiac surgeon in Richmond Virginia. His op-ed, ‘Participatory Medicine’ encourages partnership between patient...
by e-Patient Dave | Mar 13, 2014
This is a real treat – a guest post by SPM member and participatory pioneer Kate Lorig. Kate was a friend of our founder “Doc Tom” Ferguson, is cited twice in his e-patient white paper (see right sidebar), was the author of an important essay What...
by Casey Quinlan | Mar 12, 2014
Glyn Elwyn, a very smart guy/MD who’s currently thinking deep thoughts at Dartmouth, was a participant at the undisclosed location on the undisclosed project I was involved in two weeks ago. He’s posted a real barn-burner on BMJ. Its headline:...
by Casey Quinlan | Mar 11, 2014
Since HIMSS14, there’s been a robust discussion on the SPM listserv about the “business of IT” in healthcare. There were a number of our number present in Orlando for the HIMSS conference, with some of them appearing on the platform. The conversation...
by e-Patient Dave | Mar 5, 2014
Significantly expanded, below the video, an hour after the first post. Peter Frishauf, member of the editorial board of our journal, has brought what is to me the most exciting news for participatory medicine since the OpenNotes project. Importantly, this news may...
by e-Patient Dave | Mar 5, 2014
Care designers and fans of patient-centered care, listen up: a hat tip to Danish friend Malene Louise Djurhuus Laubinger for this, from The Guardian: How collaborating with patients improves hospital care. We’ve often said on this blog that participatory...
by e-Patient Dave | Mar 2, 2014
We often say here that clinicians should welcome activated patients. Hand in glove with that, we must also say: Yo, patients: get activated! Know what works, and act on it! Huzzah to Swedish SPM member and Parkinson’s patient Sara Riggare for this, on Facebook,...
by Susannah Fox | Feb 28, 2014
A guest post by Wendy White of Siren Interactive in honor of Rare Disease Day: Can empowered patients drive change in healthcare? Take a look at the progress that has been made in the rare disease community over the last 30 years—much of it spearheaded by patients and...
by Casey Quinlan | Feb 26, 2014
Today – February 26, 2014 – the Journal of the American Medical Association (JAMA) published the results of a pilot study (note: click the link, and then click the JAMA Reader link button on the right side of the page for the full text) of a volunteer...
by e-Patient Dave | Feb 25, 2014
Long-time readers will recall a hallway conversation I had at a conference in 2011 with Silke von Esenwein PhD of Emory University’s Center for Behavioral Health Policy Studies, who was presenting a poster with preliminary results of a study in process. The post...
by Susan Woods | Feb 23, 2014
What do you think should be included in a course in Consumer Health Informatics (CHI) in a graduate medical informatics program? I know a graduate curriculum begging for input from the most engaged and empowered consumers, patient advocates, and technology and health...
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