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Playing the Waiting Game While Living with a Rare Disease

Playing the Waiting Game While Living with a Rare Disease

by | Mar 1, 2022

In 2004, at age 17, I was diagnosed with an adult-onset muscle disease called limb-girdle muscular dystrophy type 2B (LGMD2B). My diagnostic journey began 10 months prior, the result of a routine blood test after a car accident which yielded concerning biomarker...

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