by e-Patient Dave | Sep 27, 2010
Jessie Gruman, PhD, Co-Editor-in-Chief of our Journal of Participatory Medicine, underwent surgery today in New York to address the fourth cancer-related diagnosis of her life. Today she released a blog post about it. Jessie has been a natural choice to co-lead our...
by e-Patient Dave | Sep 24, 2010
Pathways, a Scientific American magazine, has a long new article The Rise of the Empowered Patient. It quotes, among others, our friend Lucien Engelen (@Zorg20, which is Dutch for Health 2.0). I’m starting an all day meeting so I can’t absorb yet –...
by e-Patient Dave | Sep 21, 2010
By Lisa Neal Gualtieri. (Her earlier much-commented post on this subject is here.) The Boston Globe reported this month on the sentencing of a former US Airways Express pilot, Stephen Sharp, “for selling a powdered drink mix over the Internet that he claimed was...
by e-Patient Dave | Sep 20, 2010
You can’t be well empowered if you hear advice wrong. That’s why, in a participatory relationship, an essential skill is accurate handoff of information. The Foundation for Informed Medical Decision Making, catchily pronounced “fimdim,” has...
by e-Patient Dave | Sep 17, 2010
One of the essential enablers of participatory medicine is that the internet brings patients together with information and with each other. Sometimes those connections seem improbable, such as when an acute cancer patient finds much in common with patients who have a...
by e-Patient Dave | Sep 14, 2010
On Monday NPR’s Scott Hensley posted: “Between the Internet and all the data insurance companies and the government collect on doctors, you’d think it would be a lot easier than it used to be to find a good one. But it’s not.” Sound...
by e-Patient Dave | Sep 9, 2010
The Running A Hospital blog has another discussion of dealing with medical error. This time, the hospital has opened up an error of its own (a wrong side surgery) for examination by the Open School of the Institute for Healthcare Improvement. Sample comments: From...
by e-Patient Dave | Sep 2, 2010
At last weekend’s MITSS patient safety workshop, some of us remarked out loud that it would be great to have a simple video teaching newly admitted hospital patients the importance of hand washing, and even showing them how to speak up to a staff person who...
by e-Patient Dave | Sep 1, 2010
Claudia Williams at ONC has job openings for “a couple of talented folks” to add to the high-energy team, to work on State HIE. Details: (HIE is Heath Information Exchange. The State HIE program is described here.) Claudia says:...
by e-Patient Dave | Aug 28, 2010
Today I’m participating in a workshop, “Engaging Minority Communities in Safer Healthcare,” organized by MITSS (Medically Induced Trauma Support Services), a Boston non-profit I’ve written about before. The current speaker is Lisa...
by e-Patient Dave | Aug 24, 2010
Fascinating post by Louis Gray, reflecting on the transient nature of much of social media.
by e-Patient Dave | Aug 23, 2010
Trisha Torrey sums it up niftily on her Patient Empowerment Blog at About.com.
by e-Patient Dave | Aug 19, 2010
Well, here’s a treat: Dr. Charles Smith, a founder of the Society for Participatory Medicine, recently gave a lecture at Duke titled “How to Become a More Effective e-Patient.” Here it is, in four YouTube segments. “Charlie,” as we all...
by e-Patient Dave | Aug 12, 2010
Next in our series of posts about our founder Doc Tom. Previous time capsules: 1980 and 1985. Come, ye economics buffs and algebra fans; get out your pencils and solve for x, n, and XX: Whatever else the year 19XX is remembered for, it will — without a doubt — go down...
by e-Patient Dave | Aug 10, 2010
Last Friday we dug up our founder Doc Tom’s Seven Laws of Self-Care, from 1985. At one time Tom served as medical editor of the Whole Earth Catalog, the Woodstock-era empowerment resource whose subtitle was “Access to Tools.” At left (click to...
by e-Patient Dave | Aug 8, 2010
Next in our series on my experience with OpenNotes, a project sponsored by the Robert Wood Johnson Foundation’s Pioneer Portfolio. This item has nothing to do with OpenNotes itself – it’s what I’m seeing now that I’ve started accessing my...
by e-Patient Dave | Aug 7, 2010
Last night I got word of an unexpected treat: an hour-long conversation between some real experts about participatory medicine. It’s on Andrew Schorr’s Patient Power site – he and his team are powerhouses as well, and they produced a special...
by e-Patient Dave | Aug 5, 2010
Regular readers know that our founder, “Doc Tom” Ferguson, was an absolute visionary who saw that patients have a much bigger role in their own health than most people realize – at least in our culture. The white paper at top right of this site is...
by e-Patient Dave | Aug 3, 2010
Next in our “Why I Joined” series is Victor Montori, MD of the Mayo Clinic. My wife and I met him in May; he’s high energy, with boundless optimism. And as you’ll see, he feels very strongly about patients being at the center of healthcare. The...
by e-Patient Dave | Aug 3, 2010
Our Susannah Fox (and her research) are quoted in a piece yesterday on PBS Newshour’s online edition about the HealthCare.gov insurance research site. There’s also a small quote from me.
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