by e-Patient Dave | Dec 20, 2010
If you don’t truly understand how draining it can be to live with chronic illness, including chronic pain, go read The Spoon Theory right now. In 5 minutes it forever changed my own awareness of my wife’s arthritis and bone pain. On Twitter I saw...
by e-Patient Dave | Dec 12, 2010
All, if you have a story where you were affected by being involved (or not) in a medical decision, please see my request at “Help Me Represent You” below. Same if you have points you want me to bring to this seminar’s attention. I feel extremely fortunate...
by e-Patient Dave | Dec 6, 2010
I’m at the annual IHI Forum in Orlando, in an all-day workshop (class photo at left) titled “Whose Care Is It, Anyway … and Can Health IT Help?” Laura Adams of the Rhode Island Quality Institute was just talking about the social obstacles to...
by e-Patient Dave | Dec 2, 2010
A year ago Gangadhar Sulkunte shared his story here about how he and his wife became e-patients of necessity, and succeeded, resolving a significant issue through empowered, engaged research. As today’s guest post shows, he’s now actively engaged in...
by e-Patient Dave | Dec 1, 2010
Social media brings unexpected connections, which lets us combine thoughts and forces. This summer we connected with “Rheumatoid Arthritis Warrior” Kelly Young (see her great post here, Learning to use my mother-of-a-patient voice), which led to being...
by e-Patient Dave | Nov 29, 2010
Ted Eytan drew our attention to a real-time example of participatory thinking, in the case of his friend Matt, an engineer who’s recently been diagnosed with MS. His post This is what $8,000 worth of drugs looks like tells the story, including videos of two...
by e-Patient Dave | Nov 27, 2010
I’m preparing to participate next month in a seminar on shared decision making, and some homework led me to this government paper, published in July: Equity & Excellence: Liberating the NHS (PDF, 339k). I must not have been paying attention to my UK friends...
by e-Patient Dave | Nov 15, 2010
Update the next afternoon: be sure to read the comments, with important updates as the conversation continues. Bulletin – I just learned about this tonight: Last Friday the board of the American Medical Informatics Association (AMIA) published a position paper...
by e-Patient Dave | Nov 13, 2010
John Moore of Chilmark Research has another great post, this time on the realities being discovered about PHR use among the urban poor – something most observers considered unlikely. It’s aptly titled Smashing Myths & Assumptions: PHR for Urban...
by e-Patient Dave | Nov 12, 2010
Last week, the morning after the mid-term elections, the Disruptive Women in Health Care blog co-hosted an event at the National Press Club to discuss the election’s impact on health reform. They’ve just posted the video of the first hour’s panel,...
by e-Patient Dave | Nov 11, 2010
Previous title: “Morgan Stanley, April 2010: Mobile will be bigger than desktop. Discuss, re health.” Thanks to @Rohal and others for tweeting about a talk on internet* trends Tuesday by Mary Meeker of investment banker Morgan Stanley, at their Future of...
by e-Patient Dave | Nov 4, 2010
Josh Seidman is in charge of Meaningful Use at the Department of Health and Human Services. (Meaningful Use refers to the guidelines for how providers should use electronic medical records.)Â He wants input from us – that’s you: ONC is eager to get as much...
by e-Patient Dave | Oct 28, 2010
We talk a lot here about taking, owning, or reclaiming responsibility for our health and its care. If we ever update the e-patient white paper I want to include an area where we’re sometimes robbed of control at the most intimate time: death, and the months and...
by e-Patient Dave | Oct 27, 2010
Update Jan. 18: the video has just been released – see it at the bottom of this post. TEDMED is a truly extraordinary conference in San Diego, a fall sibling of TEDÂ talks focused on medicine. TED talks are just 18 minutes long, chosen and designed to blow your...
by e-Patient Dave | Oct 23, 2010
Guest post by Erin Macartney (Twitter) of Palo Alto Medical Foundation. We would welcome similar posts from providers (or anyone else) who’s illustrating what we advocate in the Society for Participatory Medicine: truly patient-centered care, in which...
by e-Patient Dave | Oct 22, 2010
I’m at the Connected Health conference, and more than once the question has come up: if patients have access to editing the medical record, will chaos break out? I keep thinking: Free and low-cost cloud collaboration systems can track who entered something and...
by e-Patient Dave | Oct 17, 2010
There’s an extraordinary new article in The Atlantic, “Lies, Damned Lies, and Medical Science.” It echos the excellent article in our Journal of Participatory Medicine (JoPM) one year ago this week, by Richard W. Smith, 25 year editor of the British...
by e-Patient Dave | Oct 6, 2010
Later this month something’s coming that I have a suspicion will be wonderful. Carlos Rizo of Toronto’s Health Strategy Innovation Cell tipped me off to this October 20 webcast: The Ontario Hospital Association (OHA) and the Health Strategy Innovation Cell...
by e-Patient Dave | Oct 2, 2010
Elizabeth Cohen is surely the most visible spokesperson for patient empowerment, because she’s on CNN and CNN.com. She’s got an hour-long special on CNN this weekend. Highly recommended, especially for friends and family who don’t get what this is...
by e-Patient Dave | Oct 2, 2010
My mom shot me a note today about this cover story in the new Reader’s Digest. Unhappy reading but good patient education. Cites some familiar names, e.g. Peter Pronovost and Robert Wachter. It’s good to see “wake up” messages in the mass...
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
Recent Comments