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IHI releases video of SPM’s keynote

The Institute for Healthcare Improvement (IHI) has generously released the session video of the keynote that SPM president Dr. Danny Sands and I delivered at the IHI’s annual Forum in December. At this event the IHI did two extraordinary patient-oriented things:...

Guest Post Guidelines

This page is obsolete. For blog posts, see the https://participatorymedicine.org/epatients/GuestPosts page. Articles for our Journal of Participatory Medicine: see guidelines here.      

February retrospective on e-patients.net

Researching recently I wound up looking at where we were two years ago – February 2009, just as the Society for Participatory Medicine (SPM) was forming. Fascinating to see what topics were live then and are still relevant today – this community has...

SPM’s response to the PCAST recommendation on Health IT

Click the image to view the letter we submitted last week to ONC, commenting on the December 10 report of the President’s Council of Advisors on Science and Technology (PCAST) about health IT. The response was driven by SPM policy chair David Harlow and approved...

Tips for understanding studies (Health News Review)

Update 1/22: this was originally in our “Found on the Net” sidebar, but it’s attracted enough comments that it belongs in the mainstream. I was researching the coverage of statins on Health News Review, the great e-patient resource we’ve often...

The kind of thinking to look for

There are several stages in becoming an empowered, engaged, activated patient – a capable, responsible partner in getting good care for yourself, your family, whoever you’re caring for. One ingredient is to know what to expect, so you can tell when things...

Six US health systems to share data

For those who believe in the power of facts, some wonderful news from CMIO, 12/15/10: “Six of the nation’s leading healthcare systems — Cleveland Clinic, Dartmouth-Hitchcock, Denver Health, Geisinger Health System, Intermountain Healthcare and Mayo Clinic...

“The Difficult Science”: series by Kent Bottles

Kent Bottles MD is one of the best healthcare thinkers I’ve met. Yesterday he completed a two-part tour de force on The Health Care blog titled “The Difficult Science.” Here are part 1 and part 2. This is about “how do we know what we think we...

“A lot of shackling lives in language”

What do we (patients) call ourselves? This is a deep subject that’s been debated a lot. (If I were Susannah Fox I’d toss in a dozen worthy links here:), but I’m short on time. Please add some in comments.) There is indeed power in the words we use,...

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