by e-Patient Dave | Apr 23, 2011
Over on his eCare Management blog, Vince Kuraitis (Twitter) is running a little (so far) series on “Rebuttal to PHR Luddites.” His discussion reveals that the term “PHR” (personal health record) means different things to different people; to...
by e-Patient Dave | Apr 18, 2011
Two years ago we wrote “Let’s hear it for the ‘d-patients'” — doctors who become e-patients themselves. We said “D-patients prove that patient empowerment is anything but anti-doctor. Heck, sometimes it’s a doctor preservation...
by e-Patient Dave | Apr 14, 2011
On April 21 I’ve been invited to testify again on behalf of patients at a meeting organized by the Office of the National Coordinator for health IT. As we did here twice last year, let’s discuss what the meeting should here. Here’s the document they...
by e-Patient Dave | Apr 10, 2011
Joe and Terry Graedon, long-time friends of “Doc Tom” Ferguson, produce The People’s Pharmacy, a website and radio program on NPR. Last Saturday’s program was about the Society for Participatory Medicine, which they helped to found in 2009....
by e-Patient Dave | Apr 6, 2011
The BMJ (British Medical Journal) has posted a three-part downloadable podcast about the Salzburg Statement. Part 1: History and current status of shared decision making. [26:04] Part 2: Vision of the future, and barriers to getting there. [23:31] Part 3: Informed...
by e-Patient Dave | Mar 27, 2011
Last October we posted about two great TEDMED talks related to death. The videos are now up. The empowered, engaged patient cannot ignore this issue. Patients who’ve faced death will know why these talks on death are about being alive. It’s not a paradox;...
by e-Patient Dave | Mar 22, 2011
This Thursday at the headquarters of the British Medical Journal in London, an important announcement will be made about patients’ rights to be actively involved in decisions about their treatment. Below is the press release about it. The subject is shared...
by e-Patient Dave | Mar 22, 2011
There’s so much going on health IT these days, it’ll make your head spin. Fortunately, it appears a bang-up good job is being done by the health IT team at HHS and the implementers they’re working with. Example of “head spin” and...
by e-Patient Dave | Mar 21, 2011
Readers interested in health IT issues will want to know about today’s webcast at 1:00 ET, and the policy issue described here by SPM’s policy chair David Harlow (Twitter @HealthBlawg), from the SPM members listserv: There’s a significant announcement out...
by e-Patient Dave | Mar 20, 2011
Today’s post on Paul Levy’s blog led me back to this November post, where he posted this 35 minute lecture. I was going to write about the subject, embedding this at the end, but you have to absorb this first. Clinicians and patients alike, please watch. I...
by e-Patient Dave | Mar 16, 2011
Guest post by SPM member Regina Holliday. Perhaps because my world-view is shaped by the escapades and explanations of active little boys, I often speak of super-heroes in relation to health care. I listen daily to tales of poisonous spider bites, DNA mutations and...
by e-Patient Dave | Mar 11, 2011
It is a capital mistake to theorize before one has data. Insensibly one begins to twist facts to suit theories, instead of theories to suit facts. Sherlock Holmes, in Scandal in Bohemia I’ve been reading Jack Wennberg’s new book Tracking Medicine, which is about his...
by e-Patient Dave | Mar 4, 2011
Yesterday (March 3), NPR’s popular program “Talk of the Nation” covered something we discuss often: how e-patients find information and find each other, online. Featured guests were Pat Furlong, mother of two boys with a rare disease, who started an...
by e-Patient Dave | Mar 1, 2011
Noted patient activist Dale Ann Micalizzi, founder of Justin’s HOPE (blog), has just been named co-chair of the 2011 Forum of the Institute of Healthcare Improvement (IHI). The IHI Forum is a major international healthcare event, with over 5,000 people attending...
by e-Patient Dave | Mar 1, 2011
This is an unusual contribution in our series Why I Joined. As we’ve observed (August 2008, February 2009, February 2011) that language can be important in social movements, because as words change their meaning, messages can get crossed, and what a speaker...
by e-Patient Dave | Feb 27, 2011
Again this year, as in 2009 and 2010, we’re pleased to highlight Rare Disease Day (February 28), with a post from Wendy White of Siren Interactive. Here’s last year’s prolog: One profound shift in healthcare enabled by the internet is the Web’s...
by e-Patient Dave | Feb 25, 2011
In December we posted about practice variation and shared decision making (SDM), a field of research originated at Dartmouth decades ago and best known as publisher of the Dartmouth Atlas, which describes the amazing amount of unexplained variation in how many doctors...
by e-Patient Dave | Feb 24, 2011
EMR and HIPAA is a great blog about health IT technology – well written, thoughtful, with personality. But I disagreed today with a post about the huge HIMSS conference (Health Information Management Systems Society) that ends today in Orlando. John wrote that...
by e-Patient Dave | Feb 23, 2011
ABCNews.com has posted a great new piece by Roni Zeiger MD, “The Biggest Wasted Resource in Health Care? You.” Subtitle: How Your Internet Research Can Help Your Relationship With Your Doctor. It’s well reasoned and clearly written, and continues the...
by e-Patient Dave | Feb 22, 2011
Our next guest post from SPM member Gangadhar Sulkunte (Twitter @gangadhargs). See also his family’s intense personal e-patient story from 2009. Gangadhar has responded to his experience by becoming participatory, even seeing where we need to participate in...
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