by e-Patient Dave | Jun 15, 2010
It’s bonanza time for people intrigued with the OpenNotes project, which we mentioned Saturday. While looking for something else tonight, I ran across this, about OpenNotes, from December: “Concern that sharing information with patients may cause sustained...
by e-Patient Dave | Jun 14, 2010
It’s widely rumored that a health IT industry executive was unhappy about suggestions that systems have to be usable in the eyes of employees who use them while caring for us. (Us. The patients. Your mother.) According to the rumor, the exec said “Over my...
by e-Patient Dave | Jun 13, 2010
Todd Park is the “entrepreneur in residence” (aka Chief Technical Officer) for the US Department of Health & Human Services (HHS). He’s an awesome (and I mean it) speaker, articulate and inspiring. Watch his 9:39 talk at O’Reilly’s...
by e-Patient Dave | Jun 12, 2010
The opening anecdote of the e-patient white paper tells of a patient who impersonated a doctor in 1994, to get his hands on an article about an operation he was about to have. He got busted. Two years later episode 139 of Seinfeld had something similar – Kramer...
by e-Patient Dave | Jun 11, 2010
Tom Van De Belt @Tom_Zorg20, Lucien Engelen @Zorg20 and others have published a nice “line in the sand” article in JIMR (the Journal of Internet Medical Research), surveying the scientific and “gray” (Web) literature to collect definitions of...
by e-Patient Dave | Jun 7, 2010
Three weeks ago you met mother and daughter Diane and Hilary Engelman, and learned of their odyssey through the land of smoke and mirrors as Diane fought to get Hilary the correct surgery. Hilary had been told to hurry up and have babies early because she supposedly...
by e-Patient Dave | Jun 6, 2010
A big deal happened in Washington Wednesday – something I barely knew was happening: The Community Health Data Initiative (CHDI) was announced at the Institute of Medicine. It’s exciting to me, because at long last we’re getting the chance to let...
by e-Patient Dave | May 26, 2010
As many of you know, a hard part of being in the world of cancer fighters is that sometimes we lose one. I’m sad to report the passing on April 23 of Judy Feder, who shared her powerful e-patient story here just a year ago. Please re-read how, through her...
by e-Patient Dave | May 22, 2010
Meet Donna Cryer – another person who was an e-patient before she ever heard the word. (Weren’t we all?) As with Diane Engelman’s “mama lion” story this week, we connected with Donna through the internet. I heard her speak last month at...
by e-Patient Dave | May 20, 2010
@ej_butler (Brisbane’s Ed Butler) pointed out an extended online version of “In Praise of Oversharing” from Time, May 31. Thoughty and nuanced, with a healthcare spin.
by e-Patient Dave | May 20, 2010
In my May 5 keynote at the ICSI / IHI Colloquium, one of my slides said “Empower the young.” It cited David Blumenthal MD, National Coordinator for health IT at the Dept of Health & Human Services. I’d recently heard him say, “At...
by e-Patient Dave | May 18, 2010
Through the magic of Google Alerts, Diane Engelman recently learned of this blog. She’s one heck of an e-patient, though until now she’d never heard the word. That proves patient empowerment is a real trend, driven by a powerful force: the desire to help...
by e-Patient Dave | May 18, 2010
Patient networks for the win! MIT Technology Review: “Earlier this month, the journal Lancet Neurology published a study showing that the generic drug lithium did nothing to slow the course of ALS … Eighteen months earlier, PatientsLikeMe, a for-profit...
by e-Patient Dave | May 17, 2010
Thanks to the extraordinary Dutch e-patient / expert patient Lodewijk Bos (Twitter), president of ICMCC, I discovered this classic that I didn’t know existed. Our founder “Doc Tom” Ferguson died 8 months later so I never knew him, but this piece...
by e-Patient Dave | May 16, 2010
The front page of Friday’s Minneapolis Star Tribune has coverage of the keynote address I was privileged to deliver on May 5 at the 13th Annual Colloquium of ICSI (Institute for Clinical Systems Improvement) and IHI (Institute for Healthcare Improvement). The...
by e-Patient Dave | May 10, 2010
The new definition of participatory medicine at the Society’s website notes that patients “shift from being mere passengers to responsible drivers of their health, and … providers encourage and value them as full partners.” As with any...
by e-Patient Dave | May 8, 2010
This is an essay I (mostly) wrote April 28 on Vince Kuraitis’s e-Care Management Blog, part of his series with David Kibbe MD about the Federal EMR incentives, titled “Is HITECH Working?” The series is, in my opinion, the most useful update...
by e-Patient Dave | Apr 28, 2010
The e-Caremanagement blog has released my post that we mentioned last week: “Gimme my damn data!” The stage is being set to enable patient-driven disruptive innovation. It’s part 5 of their excellent series (really, excellent) “Is HITECH working?” As...
by e-Patient Dave | Apr 25, 2010
We’re long overdue in welcoming Joe Kvedar MD of Partners Healthcare to the blogosphere. From his About page: “The term “connected health” reflects the range of opportunities for technology-enabled care programs and the potential for new strategies in...
by e-Patient Dave | Apr 25, 2010
Actor Dennis Quaid has produced an outstanding, informative, empowering and motivating CME* program, “Chasing Zero: Winning the War on Healthcare Harm.” It’s on the Discovery Channel. Part 1 is here. This is the best-produced material I’ve seen...
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