by e-Patient Dave | Apr 23, 2010
On my personal website I posted a HIPAA clarification flyer that I made up: “It’s your medical record. You have a right to it. It’s the law.” The PDF links to a Seinfeld clip from 1996 – the year HIPAA was passed.
by e-Patient Dave | Apr 22, 2010
In my previous post I noted that Vince Kuraitis and David Kibbe are running an excellent series, “Is HITECH Working?”* After a full year of increasing tensions, claims, and counterclaims, reading these posts has given me hope that it’s all panned out into...
by e-Patient Dave | Apr 22, 2010
This post is my own expression, not an official view of the Society for Participatory Medicine. Vince Kuraitis and David Kibbe are running an excellent series, “Is HITECH Working?”* In last week’s entry they linked to this slide deck by Wes Rishel...
by e-Patient Dave | Apr 16, 2010
There’s an important call to action below. If you care about making healthcare more responsive to us, and less responsive to vendors, please read to the end. This is short. Thanks to all of you who submitted comments on this week’s post, offering feedback....
by e-Patient Dave | Apr 15, 2010
We’ve talked in the past about “d-patients” – doctors who become e-patients themselves. Our own founder Tom Ferguson MD was one. “D-patients” are a special case that proves, once and for all, that being an e-patient has nothing to...
by e-Patient Dave | Apr 14, 2010
Next Tuesday Regina Holliday and I are among those testifying to the Health IT Policy Committee’s workgroup on Meaningful Use. Please help me decide what to submit for my testimony. My session is Panel 2: Incorporating Patient-Generated Data in Meaningful Use...
by e-Patient Dave | Apr 10, 2010
I was talking to Mom (age 80) the other night, and she mentioned a document she updates regularly. She prints a fresh copy to take to every doctor visit, so they’ll always have it up to date and won’t have to go digging. We’ve never discussed topics...
by e-Patient Dave | Mar 26, 2010
Last week we posted a request from Dr. Bertalan Meskó for video messages from e-patients to his “Medicine 2.0” course. Here’s my submission. (This is my first “vlog” (video blog) so the quality’s not great – like everything...
by e-Patient Dave | Mar 23, 2010
Updated 3/12/2014 with new links at bottom. One of my personal pleasures in the first year of the Society for Participatory Medicine has been discovering people in other parts of the “patient culture” who’ve been doing wonderful, empowering,...
by e-Patient Dave | Mar 19, 2010
If you haven’t found him yet, Bertalan Meskó is one of the best new-generation doctors making the most of social media. While he was still a med student his ScienceRoll blog won Blogger’s Choice in 2007, and last month it won Medgadget’s prestigious...
by e-Patient Dave | Mar 17, 2010
This springs up from a Twitter discussion this morning. It’s Atul Gawande’s fault, for his book “Checklists.” :-) Forward-thinking clinicians are doing it; participatory patients should to. Let’s get to work. Checklists in hospitals can...
by e-Patient Dave | Mar 16, 2010
Last month I posted the testimony I submitted to the Adoption/Certification Workgroup of the Health IT Policy Committee. (I urge interested parties to review the links to other resources in that post.) Today Paul Egerman, chair of that team, circulated a preliminary...
by e-Patient Dave | Mar 9, 2010
We’re pleased to present another guest post by Amy Romano, which first appeared on the phenomenal maternity blog Science and Sensibility. See also her newest post, last night, here – including a terrific BlogTalkRadio interview in which she expresses...
by e-Patient Dave | Mar 8, 2010
A joint post by e-Patient Dave and Dr. Danny Sands, written from alternating points of view. Danny: An important moment happened a few months ago during office hours – important because it brought a profound shift in Dave’s view of the doctor-patient...
by e-Patient Dave | Mar 4, 2010
Bob Brewin writes today in NextGov that the VA discovered a glitch in a system interface that could display the wrong patient’s information under peak load circumstances. The VA handled it in an exemplary fashion: they immediately issued a safety alert and shut...
by e-Patient Dave | Mar 4, 2010
Empowered patients know they’re responsible for their choice of care providers. We usually follow our clinicians’ advice, but we take responsibility for it. That’s hard when a quality agency obscures its findings. So I object to a reality reported...
by e-Patient Dave | Feb 26, 2010
We (the people on our banner graphic) are at the annual e-patients.net retreat – which, this year, is the board meeting of the Society for Participatory Medicine. Whether or not you’re a member yet (join here), we want to know: what do YOU want the...
by e-Patient Dave | Feb 24, 2010
As I’ve noted recently, this Thursday I’m on a stakeholder panel at a meeting of the Adoption/Certification Workgroup, which is part of the Federal Health IT Policy Committee. As noted in my previous post, this is a busy day, and each of us gets only 5-7...
by e-Patient Dave | Feb 21, 2010
One profound shift in healthcare enabled by the internet is the Web’s ability to be a common platform for huge numbers of low-volume diseases. This is the “long tail” effect that makes Amazon and eBay a success, selling vast numbers of items you...
by e-Patient Dave | Feb 20, 2010
I wrote last Wednesday about some background material for a panel I’ll be attending Thursday, as part of the government’s process to encourage adoption of electronic medical records. In the current administration all such discussions are wide open to the...
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