by e-Patient Dave | Feb 19, 2010
Denny Porter is executive-in-residence at the HIMSS Foundation, Institute for e-Health Policy. I met him in Washington last month at the eHealth Initiative’s annual conference, where I was on a panel. Great guy, and I love this proposal: a Federal Health Records...
by e-Patient Dave | Feb 18, 2010
We often talk here about empowered patients’ struggles to get – or even create – the care they need. Usually we’re talking about it in a medical sense. But as far too many people know, sometimes there are other obstacles. Laurie Todd is, to me,...
by e-Patient Dave | Feb 12, 2010
Can you SEE the E?
by e-Patient Dave | Feb 1, 2010
Re Time’s article “Group Therapy” in the February 8, 2010 issue, arriving on newsstands now: Time’s freelance reporter Bonnie Rochman contacted our Susannah Fox to discuss her remarks at the Institute of Medicine last October. In hours of...
by e-Patient Dave | Jan 20, 2010
This is a guest post from Christine Kraft, Twitter friend @ChristineKraft. She’s a pensive, musey blogger at CocoVillage, and “wicked smaht,” as we say in Boston. She’s also the one who introduced us to Regina Holliday last year. She recognizes...
by e-Patient Dave | Jan 16, 2010
This is a guest post by Lucien Engelen (Dutch Twitter friend @Zorg20), who was featured in October’s The internet is changing healthcare – video from Reshape09. Here, he takes it to the next step, moving from health 2.0 to “health 2.010”. I love it!...
by e-Patient Dave | Jan 15, 2010
Back in September, Jonathan Rauch of the National Journal wrote a terrific (fact-based!) send-up of our archaic, arcane, not-customer-centric healthcare system, titled “If Air Travel Worked Like Health Care.” I wish I’d known about it then, but I...
by e-Patient Dave | Jan 6, 2010
The following is the proposal I submitted Tuesday, to speak at O’Reilly / TechWeb’s Government 2.0 Expo, May 25–27 in Washington. ______________________________ The Invisible Stakeholder: Why America Needs a Patient-in-Chief “These are exciting and...
by e-Patient Dave | Jan 2, 2010
Guest post by Alan Viars (@Aviars), CEO of Videntity Systems, Inc. This past year my father required open heart surgery. This is a short article about the hurdles we (his family) encountered along the way. I’ve changed the names, because it is not my intention to...
by e-Patient Dave | Dec 27, 2009
The Quantified Self (aka “QS”) is an informal San Francisco based group of people who are tracking one thing or another about their lives. (Could it exist anywhere else??) They have occasional “Show&Tell” meet-ups, with elbow-rubbing and a...
by e-Patient Dave | Dec 20, 2009
We’re thrilled to see our Joe and Terry Graedon, of PeoplesPharmacy.com, in the New York Times (“Not All Drugs Are the Same After All”) telling a truth that the FDA hasn’t figured out: generics don’t always work the same as the brand name...
by e-Patient Dave | Dec 18, 2009
Cross-posted, with prolog, from the blog of Ted Eytan MD. Yesterday the Institute for Healthcare Improvement’s “WIHI” series hosted a terrific webcast on the Open Notes project that’s being funded by the Robert Wood Johnson Foundation. (I need...
by e-Patient Dave | Dec 16, 2009
I am about to punk my well-known doctor. :–) Me being me, I just had my annual physical. Great visit and all that. Yesterday I got a letter about my lab results. My cholesterol and weight are trending unfavorably, so the good doctor said “you need to take...
by e-Patient Dave | Dec 15, 2009
Yesterday I attended “How Access to Information Can Empower Patients and their Caregivers,” conducted by the Consumer Partnership for eHealth. CPeH is an alliance of stakeholder groups sponsored by the National Partnership for Women and Families. It has no...
by e-Patient Dave | Dec 10, 2009
Scientific American writer Robin Lloyd (Twitter: @RobinLloyd99) has written a nice, clear, hit-the-nail-on-the-head post on their blog about our Journal of Participatory Medicine.
by e-Patient Dave | Dec 10, 2009
There’s new validation that participatory medicine is an idea whose time has come: the co-chairs of the Society for Participatory Medicine (my primary physician Dr. Danny Sands and I) are on this year’s list of 20 People Who Make Healthcare Better, an...
by e-Patient Dave | Dec 5, 2009
Some people think e-patient ideas are new. They’re not. I’d like to give credit to a noble antecedent, and ask for your support. Shortly after I discovered this blog (February ’08) I recognized two strong precedents from earlier in my life:...
by e-Patient Dave | Dec 4, 2009
There’s a new resource for a vital e-patient skill: reading health news responsibly. It helps us be smarter before we bring new findings to the attention of other patients and our providers – not to mention smarter for our own benefit. When “Doc...
by e-Patient Dave | Nov 23, 2009
Understanding medical research, at some level, is a fundamental e-patient skill. As we start digging for reliable new information, we have to learn to separate quality from questionable. (If you think medical journals are academically pure, you’ve got learning...
by e-Patient Dave | Nov 16, 2009
In last weekend’s post about “patients want all their data” I said I wished I’d known about the article (published mid-May) during last summer’s health data debates in Washington. Incredible Dutch e-patient Lodewijk Bos tweaked me, saying...
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