e-Patient Dave, Author at SPM Blog

SPM survey in Times Square: “Americans believe their medical data should be shared with their providers”

by e-Patient Dave | Apr 8, 2015

National Survey Also Shows 87% Think Health Information Exchange Should be Free First paragraph updated next day In case you missed it last month, there was an unprecedented, huge moment in SPM’s history – we collaborated in a national survey of...

Regina Holliday’s whooping cough story in PharmaTimes: “Treat us as partners”

by e-Patient Dave | Apr 2, 2015

SPM member/legend Regina Holliday, a powerful force for grass roots empowerment and creator of The Walking Gallery of Healthcare, got whooping cough (pertussis) this winter, despite having been vaccinated just a few years earlier. The UK magazine Pharma Times...

NLM Director Donald Lindberg is retiring. Speak up: what’s next for the Library?

by e-Patient Dave | Feb 17, 2015

Dr. Donald Lindberg, long-time director of the National Library of Medicine, is surely the single most-quoted authority from “Doc Tom” Ferguson’s e-Patient White Paper. In almost every speech I’ve given in the past five years I’ve used...

OpenNotes in the BMJ: the message goes global, adoption is international

by e-Patient Dave | Feb 12, 2015

Our Society for Participatory Medicine is all about effective patient-clinician partnerships, and to us that simply requires patient access to all information about the case. As SPM co-founder Dr. Danny Sands often says in his speeches, “How can patients...

Big BMJ supplement on Patient Centred Care – with many SPM and MedX voices

by e-Patient Dave | Feb 11, 2015

This is a great week for SPM, for our colleagues at the Stanford Medicine X conference, and for everyone else who’s been working for years to shift medicine’s thinking about the role of the patient: Yesterday the BMJ (formerly British Medical Journal)...