by e-Patient Dave | Nov 15, 2009
Ten years ago this week, 11/18/99, Linda Kenney was scheduled for ankle replacement surgery. She woke up three days later in the ICU. Her chest had been cut open. She was in the hospital ten days. And nobody talked about what had happened. What had happened is that...
by e-Patient Dave | Nov 15, 2009
An important study just got my attention. Patients and clinicians in different cities were asked questions about concerns and preferences. Titled “Insights for Internists: ‘I Want the Computer to Know Who I Am’,” the study reports: (emphasis added)...
by e-Patient Dave | Nov 10, 2009
An interview Regina Holliday appeared yesterday on NPR’s All Things Considered. More on this later, but I want to get it posted.
by e-Patient Dave | Nov 1, 2009
A signal moment in the history of this blog was the arrival in late summer of a new ally, the birthing movement, represented by Amy Romano, the blogger at Science and Sensibility, the Lamaze International blog. Amy gets it: participatory medicine is not just about the...
by e-Patient Dave | Oct 28, 2009
I wish I could have been at the Reshape2009 conference this month in the Netherlands. The Twitter buzz was stimulating, and the 6 minute opening video caused a lot of buzz. I didn’t get it all because it was in Dutch. Now, thanks to producer Lucien Engelen...
by e-Patient Dave | Oct 24, 2009
Like our contributor Sarah Greene, DC resident Cindy Throop was moved by Paulo Freire’s book, Pedagogy of the Oppressed. “The patient revolution must come from patients,” Cindy says. “We can educate and inform patients, but ultimately only...
by e-Patient Dave | Oct 15, 2009
Marcia Angell MD is a well-known, respected physician, long-time editor of NEJM. So it was a bit of a shock today when Amy Romano, blogger for Lamaze International, sent me this quote: It is simply no longer possible to believe much of the clinical research that is...
by e-Patient Dave | Oct 12, 2009
Next week at the Connected Health Symposium in Boston, the Society for Participatory Medicine will launch its new journal. In keeping with the society’s spirit of physician-patient partnership, the Co-Editors in Chief are a physician and a patient: Charlie...
by e-Patient Dave | Oct 9, 2009
We have wonderful news: next week Grand Rounds is devoted to Participatory Medicine. We are asking for your personal stories of how patient engagement has worked for you. It’s being hosted by Robin, the incredible patient who runs the Survive The Journey blog....
by e-Patient Dave | Oct 5, 2009
“While other industries take as their focus such shallow concerns as the making of money, the health care profession prides itself on dealing with matters of life and death. But that’s not the only thing distinguishing health care from other industries: it is...
by e-Patient Dave | Oct 4, 2009
If you haven’t already, please watch this, which is the best concise introduction to e-patients and participatory medicine I’ve seen: Susannah Fox mentioned this video six weeks ago, in a quickie post in our “found on the net” sidebar. But that...
by e-Patient Dave | Oct 3, 2009
That’s the strongest language yet in our “Why Participatory Medicine” series. And it’s not our words – it’s the words of a board certified neurosurgeon after he heard the Participatory Medicine message at Medicine 2.0 last month....
by e-Patient Dave | Sep 30, 2009
As promised yesterday, here is Amy Romano’s guest post for our series leading up to the Oct. 21 launch of the Journal of Participatory Medicine. Amy is a nurse-midwife and advocate for mother-friendly maternity care. An expert in research analysis, she manages...
by e-Patient Dave | Sep 29, 2009
In our “Why Participatory Medicine” series, leading up to the October 21 launch of the Journal of Participatory Medicine, tomorrow’s guest post will be a special treat for me. It contains a breakthrough insight about participatory medicine, and...
by e-Patient Dave | Sep 29, 2009
A guest post by John Sharp of the Cleveland Clinic: If you have not read the e-Patient White Paper, you do not understand the future of medicine. Being an e-Patient is beyond being empowered. The subtitle of the paper, “How they can help us heal healthcare,” describes...
by e-Patient Dave | Sep 27, 2009
Fair warning: in the weeks leading up to the October 21 launch of the Journal of Participatory Medicine, just about everything you see here is going to tie in to the society and journal. A fundamental tenet of PM is that patients (ordinary citizens, toi et moi) have...
by e-Patient Dave | Sep 26, 2009
A Google alert popped up today, saying that a participatory physician in India had cited this blog. Don’t we love it when social media let empowering information spread! It’s exactly what our founder “Doc Tom” predicted with his now-famous 1995...
by e-Patient Dave | Sep 21, 2009
Cross-posted from my website, ePatientDave.com – the happy home for my new business! I’ve just returned from Toronto, where I gave the opening keynote at the Medicine 2.0 Congress. It was titled “Gimme My Damn Data,” which is an unconventional...
by e-Patient Dave | Sep 12, 2009
We’ve written here before about Regina Holliday (follow her blog), whose husband Fred died June 17. In today’s edition of the British Medical Journal, her mural is the picture of the week: Ted Eytan MD took the picture and posted it on Flickr. Today he...
by e-Patient Dave | Sep 1, 2009
I can barely contain my happiness (oh heck, I’ll let it spill) at this: participatory patients and physicians creating educational content, using free internet software tools, and posting it for people to read (free) around the world. I’m a member of the...
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