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KQED examines realities of Canadian healthcare

Good piece on NPR this morning about what a KQED correspondent found when she went to Canada and talked to citizens and doctors about their experience of wait times. Click to go to their site and listen. One might ask, what does this have to do with patient...

What do YOU think they mean by “health reform”?

After hearing about 800 million mentions of “healthcare reform” in the past couple of months, this weekend I visited my normal (not-HC-geek) family in Maryland for Mom’s 80th birthday.  (Woohoo! Large clan descends, six siblings and most of the...

Dx: Revolting.   Rx: Revolt.

Tuesday night, endorsement #906 on HealthDataRights.org came from a Judy Beckman, who says: “I agree all the way I cannot get MY records unless I pay for MY records $1.00 per page WHY WHY these are MINE???????????” Indeed, why? Whose data is it, anyway? This spring...

“Moms, do not give up.”

This item from ABC News nearly brought tears to my eyes. The first signs that something was wrong with 11-year-old Connor Teare came when he was a toddler. His muscles were growing increasingly rigid and becoming more difficult to move. He went from leg braces to a...

“Give us our data”:
my talk at the NeHC board meeting

Last Tuesday, June 2, I was on a consumer panel at a board meeting of the National eHealth Collaborative. This is a heady group to be addressing; as this press release says,  nine of these people are on the advisory committees that are working directly with David...

The power of listening and being heard

This is a special occasion for me, a guest post by Dr. Louise Glaser. Louise is a pediatrician in the Kaiser Permanente system, where among other things she’s Chief of Leadership and Communication Development in the Sacramento area. I met her a year ago at the annual...

Another great reason to be a participatory e-patient

The Boston Globe had a brief interview with me last Monday, and commenter “MikeScanlon” gave a great additional reason to go “e”: Doctors are required to respond to a lot of things – health insurance requirements, liability insurance...

EMRs: “Would you take it if it were FREE?”

Blogger John at the “EMR (EHR) and HIPAA” blog posted a musing that caused my business antennas to twitch. A vigorous discussion has started in the comments. Here’s the thing: we’re talking about the billions of incentives we’re offering...

The Markle Foundation’s work on Meaningful Use

Last night I posted my own thoughts on the definition of “meaningful use,” a term that will have significant impact on our next-generation medical records systems. To me it’s vital that the term be defined to include full access for you and me...

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