by e-Patient Dave | May 10, 2009
I’ve struggled with what to say about this subject for two weeks, because I want to “get it right” but it’s vast. So I’m giving up any hope of being comprehensive, and I’m just going to say what little I know, and what I think, and...
by e-Patient Dave | Apr 30, 2009
Chapter 5 of the e-Patient White Paper is E-Patients as Medical Researchers. It details how, in the absence of sufficient medical data for their cases, patients and parents have conducted extraordinary research, time after time, often stunning the medical...
by e-Patient Dave | Apr 26, 2009
One of the key learnings of my first year as a student of the e-patient movement, studying how healthcare is evolving, is this: People get radicalized when it gets personal. This is one such story: it’s the e-patient awakening of a long-time personal friend of...
by e-Patient Dave | Apr 19, 2009
This post will complete (I hope!) the list of errors that I discovered in the billing data that forms part of my medical records. The original post is here. As I said in the the previous post, “Let me make clear, I personally have only one agenda: to empower, equip...
by e-Patient Dave | Apr 18, 2009
Today’s Boston Globe reports Beth Israel halts sending insurance data to Google. I commented: I’m the patient in question. In her original piece 4/13, Globe writer Lisa Wangsness did a terrific job of accurately capturing both the details of this complex...
by e-Patient Dave | Apr 17, 2009
I never knew “Doc Tom” Ferguson; he died three years ago this week, April 14, 2006. That was nine months before my diagnosis and 21 months before I discovered the movement that he founded. That team, with later additions, is here. Tom, I think of you...
by e-Patient Dave | Apr 17, 2009
A few items before I head off to the day job: As my hospital’s CIO John Halamka posted Monday, we had a concall Wednesday night. He, Roni Zeiger of Google, my physician Danny Sands and I spoke for an hour about this entire broad topic....
by e-Patient Dave | Apr 11, 2009
NY Times: Rural Doctor Finds Benefits in Electronics. I know all the experts have a thousand reasons why “it’s not that simple,” but I do this stuff all the time in my day job and I don’t know what’s such a big freakin mystery. Having...
by e-Patient Dave | Apr 9, 2009
I’ve been thinking a lot about where to take the discussion that’s exploded on my post about moving my data from PatientSite into Google Health. I’m hardly an IT guru, but as I said, I do work with data at my day job. And before we proceed,...
by e-Patient Dave | Apr 5, 2009
From my wife: I truly don’t understand why human medicine finds it is so difficult to put medical records on the computer. Veterinary medicine has had that ability at least for the last 10-15 years. An example is the Idexx Cornerstone Veterinary Practice...
by e-Patient Dave | Apr 1, 2009
This is a complex post, so don’t jump to any conclusions. Two weeks ago (gad, was it that long?) I asked you to think about something for a few days: Imagine that for all your life, and your parents’ lives, your money had been managed by other people who had extensive...
by e-Patient Dave | Mar 30, 2009
IBM’s “Smarter Planet” blog has picked up e-Patient Dave’s post A Thousand Points of Pain, about how enmeshed and entangled our healthcare system has become, and the implications for people who want to design a transformed system. Dave added a...
by e-Patient Dave | Mar 25, 2009
… or involved in an incident, as patient or provider, Paul Levy solicits your submission. He’s hosting the medical blogosphere’s Grand Rounds next Tuesday, and has chosen the topic When Things Go Awry. Details and instructions are here....
by e-Patient Dave | Mar 24, 2009
Judy Feder is an e-patient who has contributed several comments here in the past. But it was just today that I learned what an extraordinary new e-patient chapter has unfolded in her life in the past few months. If you’re a student of the e-patient principles,...
by e-Patient Dave | Mar 19, 2009
Update 3/21: For easier reference, I’m editing this to incorporate some goodies from comments below. Here’s a little game that just might turn into something transformational. Since I started learning about this world of participatory medicine, I’ve...
by e-Patient Dave | Mar 18, 2009
I want you to think about something for a few days. Imagine that for all your life, and your parents’ lives, your money had been managed by other people who had extensive training and licensing. Imagine that all your records were in their possession, and you...
by e-Patient Dave | Mar 15, 2009
We’ve been talking here (especially about Medpedia) about the vital question of what constitutes reliable information. This morning I ran across a bit of idiocy on YouTube (you’re shocked, I know) regarding my own type of cancer, titled “Two New...
by e-Patient Dave | Mar 12, 2009
We’ve been known to have our minds blown, but this one started as an eye-popper and got better. A friend writes: “Even the DoD is getting in the act: Patients urged to take charge of their care.” But holy cow, there was a LOT more behind that...
by e-Patient Dave | Mar 9, 2009
Well, this ought to generate some chatter among us e-literati who’ve been trying to get noticed by the stodgies! (Or, as Pew would say, “The 74% of the 80% onliners who look for health info are 99.9% happy to see this.”) The issue of Health Affairs...
by e-Patient Dave | Mar 8, 2009
A friend writes: If you ever needed an example of the mind’s influence on disease, please see the figure at the bottom of page 3 here: Impact of exposure to war stress on exacerbations of MS. Wow.
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
Recent Comments