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The Social Life of Health Information, 2011

Here it is: my 2010-11 yearbook! Will you sign it? That’s how I feel about this latest report from the Pew Internet Project and the California HealthCare Foundation: “The Social Life of Health Information, 2011.”  It contains all the insights...

Map the frontier. Bring data. (More coming soon!)

The Pew Internet Project and California HealthCare Foundation will released our latest report on the internet’s impact on health and health care tonight at midnight (Eastern U.S. time). It is titled, “The Social Life of Health Information, 2011” (and...

ISO: Randomized Trials

I received an email the other day containing the following question: Are you aware of any randomized trials – in progress, or published – that examined the impact of social networking web 2.0, etc. on patient-level variables (e.g., improved rates of preventive health...

PatientsLikeMe goes wide

PatientsLikeMe opened up to every condition today. From their press release: Today, PatientsLikeMe (www.patientslikeme.com) announces the expansion of its platform and invites patients with any condition to join. The five-year-old free online health data-sharing...

Peer-to-peer healthcare on NPR

To me, there are two types of breaking news in health care: the macro and the micro. Macro health news breaks when there is a natural disaster, a scientific breakthrough, or a new twist in a policy debate (see: “ACOs”). I read up on the facts and try to...

What if information spread more quickly than a virus?

On March 11, the White House hosted an event to mark National Women and Girls HIV/AIDS Awareness Day. The event was livestreamed from whitehouse.gov and is archived on YouTube: I have written before about the unique nature of conferences concerning...

Peer-to-peer Healthcare at the White House

It’s hard to say this without sounding like I’m bragging, but that’s not going to stop me: I’m going to the White House tomorrow to talk about Pew Internet Project’s latest research on peer-to-peer healthcare. The White House Office of...

Making Strides Toward Improving Health Literacy Online

This is a guest post by Jessica Mark, healthfinder.gov and Outreach Program Manager, Health Communication and eHealth Team in the Office of Disease Prevention and Health Promotion at the U.S. Department of Health and Human Services We all struggle with complex health...

Healthcare Out Loud

Last fall, at the e-Patient Connections conference, I gave a sneak preview of some survey results which are set to be have been released on the Pew Internet site on Monday, Feb. 28. I hoped to spark new ideas for a savvy, plugged-in audience and I ended up surprising...

A Health Information Divide

This post is first and foremost a thank-you note. Thank you to everyone who posted a comment, emailed me, or tweeted a suggestion in response to my request for input last July: Crowdsourcing a Survey. Six new topics came directly from those conversations. Thank you to...

What people living with disability can teach us

The Pew Internet Project recently issued a short report noting that people living with disability are less likely than other adults in the U.S. to use the internet: 54%, compared with 81%. The first question many people ask when they hear that is, Why? The second is,...

Cancer 2.0

Given the evidence that people are ready, willing, and able to engage in online discussions about cancer prevention and treatment, what steps are being taken to ensure that the U.S. (and the world) does not miss this latest opportunity for education and discovery? The...

Going Viral Against HIV and STIs

The New York State Department of Health AIDS Institute, in partnership with AIDS.gov, held a one-day forum on social media, HIV, and sexually transmitted infections (STI) that turned out to be an unfiltered discussion of love, truth, and technology. Why was it so...

President’s Cancer Panel: Input, Please

What evidence would you bring to convince cancer researchers and policy makers to pay attention to how the internet is changing health and health care? That’s my challenge for the Dec. 14 meeting of the President’s Cancer Panel, “The Future of Cancer...

Engage With Grace Over Thanksgiving

Can you and your loved ones answer 5 questions about the end of life?  Alex Drane, founder of Engage With Grace, explains why Thanksgiving is a good time to talk about these issues: If you have thoughts to share about Engage With Grace, end-of-life decisions, or...

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