The Power of Rare Disease Patients

I’m honored to post this essay by Wendy White, Founder & President of Siren Interactive: Thanks to the Pew Internet Project, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families) are helping to bring about a...

Health, Technology, and Communities of Color

Serendipity brought me two opportunities this week to present Pew Internet’s data on communities of color and young people, particularly as it relates to health. On Wednesday I was a guest of the Federal HIV/AIDS Web Council and on Thursday I spoke at a meeting...

What’s your health care dream?

  #whatifhc in #TheWalkingGallery   Note: This is two posts in one — scroll down to read Regina Holliday’s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into...

The Rise of the e-Patient

Lee Rainie, director of the Pew Internet Project,  presented this wonderful overview of the Project’s health findings at Providence St. Joseph Medical Center in Burbank, CA, on January 12. The Rise of the e-Patient View more presentations from Pew Research...

For some people, it’s still 1994

Here’s a question which inspired me today, received via email from Christie Silbajoris,  director of NC Health Info: My library is rethinking its provision of services to the public.  We’ve got a history of going beyond what the average academic health sciences...

World AIDS Day

Mark Senak’s post, “World AIDS Day: The Past Cannot Be the Future,” inspired me to write an epic comment about different perspectives on illness and care delivery, so I adapted and expanded it to share here: I recently read Susan Sontag‘s two...

Health Info Have-Nots

I just published a quick take on who doesn’t gather health information online, including the stark finding that three-quarters of U.S. adults who have less than a high school education say they do not get health information online. One survey question I cited...

Conference Season: Patients and Caregivers Welcome

We are deep into the fall conference season. One of my favorite trends is the increasing rate of inclusion of patients and caregivers at health care events, on stage or in the audience. The California HealthCare Foundation was a pioneer in this regard. Patients 2.0,...

Peer-to-peer Healthcare at Medicine 2.0

I was honored to give the closing keynote at the Medicine 2.0’11 Congress at Stanford. In preparation for it, I gathered all of the Pew Internet Project’s recent research on social networks, smartphones, and health communications. Then I added stories from...

When Patients Band Together: Far From a Disgrace

When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a...
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