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Connected Health: Patient networks panel

My research findings and their connection with real-life health care were given new life when I discussed them with Lisa Gualtieri, Josh Bernoff, Tim Edgar, and the audience at the Connected Health symposium. If you’re intrigued, watch a video of the panel and...

Who *are* those guys? (Matt Wiggins and Remedy Systems)

How many times have you been at a conference, listening to some panel, when all of a sudden someone says something that snaps you out of your stupor and you think, “Who *is* that guy?” (And if you’re lucky enough to remember Butch Cassidy and the...

On Veterans Day: Inspiration

Necessity is the mother of invention.  I have been profoundly moved over the past few months by a handful of people who have been forced to live this idiom or who have stepped up to the challenge of aiding wounded warriors. In honor of Veterans Day,  please take a...

Twitter: filter, suggestion box, idea machine, window

On Friday I dashed off this tweet: PhD student just asked me which journals I read to stay up to date on health + tech. My answer: Twitter. It was classic RT bait and indeed it was echoed dozens of times by fellow Twitter geeks — more than any other tweet...

Building a Research Agenda for Participatory Medicine

For this Grand Rounds, I chose David C. Kibbe & Joseph C. Kvedar’s article, “Building a Research Agenda for Participatory Medicine” (JoPM, Vol. 1, 2009). I will highlight two of their “ready-to-go” research questions: What is the role...
e-Patient Connections 2010

e-Patient Connections 2010

Kevin Kruse and his team have put together another incredible event in Philadelphia: e-Patient Connections 2010. Follow the tweets by searching for #epatcon or read the excellent summaries being written in real-time by Leigh Householder and Seth Quillin on the blog...

What is the ROI on love?

Last week’s Mayo Transform symposium was a two-day excursion into the world of science, data, design, and the secret ingredient to health: love. Patch Adams, MD, kicked things off in grand style. If you’ve never seen him speak, treat yourself to a hit of...

What can surgeons learn from patients?

I’m going to be on a panel at the American College of Surgeons 96th Annual Clinical Congress on October 5 in Washington, DC. The session title is pretty provocative: To Tweet or Become Extinct?: Why Surgeons Need to Understand Social Networking and my part of it...

The Power of Mobile (Video)

The video of my Mayo Transform 2010 speech, The Power of Mobile, is now up on the conference site as well as on YouTube. It was an honor to be part of this event. Many thanks to David Rosenman and his team for inviting me!  

The Power of Mobile

Prepared for Mayo Transform 2010: Thinking Differently About Health Care (video now available). Ten years ago, I wrote the Pew Internet Project’s first report on the impact of the internet on health care, calling it “The Online Health Care Revolution.” Back then, the...

Living N=1

If you haven’t listened to the Patient Voices series on The New York Times site, let me be the first to recommend it. I spend quite a bit of time writing up survey data, working with moderately large respondent pools (N=2,253 is the number of people who...

Patient Communities: Which Way Forward?

If you were designing a disease treatment system from scratch, bringing together clinicians, patients, researchers, and advocates, what platform would you use to take advantage of the community created by this umbrella group? This isn’t just some health geek...

“Give Us Our Dammed Data” – Regina Holliday

17 authors with weapons in hand stare down upon the viewer. The three panel painting measures 60 inches by 144 inches. It is a very large painting, and yet it is crowded with those who have been hurt and those who have suffered. Every one of them is an author. Nearly...

Laugh, Sing, and Eat Like a Pig

e-Patient Dave’s book, Laugh, Sing, and Eat like a Pig, is out! Mark Graban captures the health geek excitement: The best writers make you feel like you’re spending time with a wise friend — add some tears and laughs and you have Dave’s book. I...

Crowdsourcing a Survey: Health Topics

The Pew Internet & American Life Project will soon go into the field with our next health survey and we need your help. One of our core findings (8 in 10 internet users, or about two-thirds of U.S. adults, look online for health information) is based on a series...

Pandas, Lobsters, and Health Care

Joe Kvedar asks an excellent question in his post, The Next Phase of Connected Health: Connected Personalized Health: What are the best variables to consider when taking connected health programs from pilot to scale? He imagines a matrix with three axes: severity of...

Mobile, Social Health at the National Library of Medicine

Update: The NLM released new widgets on July 14, along with a redesigned MedlinePlus site. (Read @eagledawg’s take on these new tools, as well as her response to this post.) Speaking to the senior staff of the National Library of Medicine last week was like...

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