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The Power of Rare Disease Patients

I’m honored to post this essay by Wendy White, Founder & President of Siren Interactive: Thanks to the Pew Internet Project, we have a lot of data about ePatients. These empowered, engaged and educated patients (and families) are helping to bring about a...

Health, Technology, and Communities of Color

Serendipity brought me two opportunities this week to present Pew Internet’s data on communities of color and young people, particularly as it relates to health. On Wednesday I was a guest of the Federal HIV/AIDS Web Council and on Thursday I spoke at a meeting...

What’s your health care dream?

  #whatifhc in #TheWalkingGallery   Note: This is two posts in one — scroll down to read Regina Holliday’s point of view. From Susannah Fox: For me, Twitter is a free-wheeling space where people dance with ideas. Anyone is welcome to jump into...

The Rise of the e-Patient

Lee Rainie, director of the Pew Internet Project,  presented this wonderful overview of the Project’s health findings at Providence St. Joseph Medical Center in Burbank, CA, on January 12. The Rise of the e-Patient View more presentations from Pew Research...

For some people, it’s still 1994

Here’s a question which inspired me today, received via email from Christie Silbajoris,  director of NC Health Info: My library is rethinking its provision of services to the public.  We’ve got a history of going beyond what the average academic health sciences...

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