by e-Patient Dave | Jul 25, 2012
On Monday Ileana Balcu posted about a great new article by SPM member Eve Harris, whom we’ve covered before. Eve’s post is a superb depiction of how an empowered patient – someone who knows how to think for themselves and speak up –...
by Ileana Balcu | Jul 24, 2012
Member Eve Harris wrote another great blog post for KQED – Public Media for Northern California. It is about one woman’s personal decision on how to treat her breast cancer. A short extract below: Basila is strong evidence that individuals react...
by Susannah Fox | Jul 19, 2012
A few weeks ago, with a combination of alarm and excitement, I realized that I would be presenting my research about rare-disease communities to a roomful, not just a row full, of actual rare-disease patients and caregivers. This was no academic exercise. It was as if...
by Ileana Balcu | Jul 3, 2012
By Michael L. Millenson The empowered patient, skeptical of professional authority, is not a new phenomenon: he was actually created by the American Revolution. Reading through historian Gordon Wood’s Pulitzer Prize-winning book, The Radicalism of the American...
by Ileana Balcu | Jun 25, 2012
From the HIMSS Blog, Adam Bazer with a personal health story where even in a great hospitals the IT is not as connected as can be. We wish your son Ari well, Adam! http://blog.himss.org/2012/06/25/healthcare-it-from-the-view-of-a-worried-father/ The link inside the...
by Ileana Balcu | Jun 20, 2012
Do you have the ideal healthcare network of individuals supporting your physical, mental, emotional, and spiritual aspects? Sally Richards does. She works with hospitals, neurofibromatosis (NF) organizations, government entities and patients in what she calls “a...
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