by e-Patient Dave | Jan 5, 2012
SPM member Fred Trotter is a member of the open source / innovator community that knows “hacker” as a noble word – people who disregard how something was intended to be used (by its designers) and rearrange the parts to suit their needs. Today on the...
by e-Patient Dave | Jan 3, 2012
As we work to re-engineer both the culture and the structure of healthcare, one question that constantly faces e-patients with uncommon or difficult conditions is: Where do I turn, to find genuine value? The traditional answer is “ask your doctor,” and...
by e-Patient Dave | Dec 31, 2011
It’s fitting that our last post of the year should be about a patient community … winning an award! ACOR’s “KIDNEY-ONC” kidney cancer patient community was recently honored with the “Maily” Listserv Choice award in this, the...
by e-Patient Dave | Dec 21, 2011
In the Society for Participatory Medicine we talk about patients shifting “from being mere passengers to responsible drivers of their health.” Two posts Tuesday from SPM members provide some great specifics. First, orthopedist @HJLuks published Your Role...
by e-Patient Dave | Dec 20, 2011
This post contains street language about body parts, harvested from Twitter last night with Xeni’s permission. This is a story of a non-medical person getting it in gear when she finds herself in need, and what happens when she does. A famous blogger/journalist...
by Kathleen O'Malley | Dec 6, 2011
Guest blogger Kathy Kastner shares her experience as an SPM member. Her website, Ability4Life, offers resources for participatory family caregivers. When I first heard the words “Participatory Medicine” I felt fully in synch, even without delving into its...
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