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Dx: Revolting.   Rx: Revolt.

by | Jul 1, 2009

Tuesday night, endorsement #906 on HealthDataRights.org came from a Judy Beckman, who says: “I agree all the way I cannot get MY records unless I pay for MY records $1.00 per page WHY WHY these are MINE???????????” Indeed, why? Whose data is it, anyway? This spring...

Imagine someone had been managing your data: next anecdote

by | Jun 19, 2009

Next anecdote about poorly managed medical data: Amen! Just had an incident where my SS# was attached to a different patient’s name in the electronic med record. And the health facility will not tell me where the error occured, or how long someone else’s name was...

“Give us our data”:
my talk at the NeHC board meeting

by | Jun 6, 2009

Last Tuesday, June 2, I was on a consumer panel at a board meeting of the National eHealth Collaborative. This is a heady group to be addressing; as this press release says,  nine of these people are on the advisory committees that are working directly with David...

e-Patients Demand: Put An End To
Data-Hugging Disorder

by | Jun 4, 2009

“Statistics should be the intellectual sidewalks of a society, and people should be able to build businesses and operate on the side of them” This quote from Hans Rosling is part of a speech where he presented the following: Database-hugging disorder (Dbhd): A...

For Want of a Surge Protector…

by | Jun 4, 2009

It seems somewhere between highly unlikely and impossible for this to happen in this day and age, but Methodist Hospital in Indianapolis had to turn away patients when a power surge took down its electronic medical records system. Yes, that’s right — our...

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