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CCHIT, PHR and the Lack of e-Patient Representation

When Google Health was launched, a few weeks ago, all the onus was put on the privacy issue. So much so that we may have lost focus on other issues that are of real importance to the future of e-Patients (that means you and me and everybody else you know!). For...

Parade should have asked e-patients

Aside from debunking a crummy column, this is a call to action for journalists. Today Parade featured a column that appears to be pure flackery. If the editors had done a reality check with a patient community they would have been much better informed, with little...

Google Releases Google Health

Google Health launched this week to the public. It is pretty much what everyone anticipated — an online electronic record that people can maintain if they wanted to. Highlights include quick information at your fingertips to your health concerns that you enter...

Randy Pausch, empowered patient / participatory medicine

Chapter 12 of Randy Pausch’s best-selling book The Last Lecture opens with a classic anecdote of what it looks like when an empowered patient practices participatory medicine with an equally participatory care team: CT scans revealed I had pancreatic cancer, and it...

Why Doesn’t My Doctor Answer My Email?

Because he or she is afraid — afraid of being overwhelmed by one more responsibility, of not being reimbursed for time spent answering emails, of patient privacy, of HIPAA, and of course, of legal liability if they set an expectation of replying to emails in a...

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