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More important than Time and Money

More important than Time and Money

Mortality is a fabric more important than money, politics, and belief systems.  We all share the same responsibility of health; the only variable is the time in our life we acknowledge it. Rare/undiagnosed consumer behavior is the most intense example of participatory...
Hey ChatGPT, what’s Participatory Medicine?

Hey ChatGPT, what’s Participatory Medicine?

I’m working on lots of things about generative AI in healthcare, because among other things, “GenAI” is incredibly empowering and liberating for e-patients. For kicks I decided to ask GPT-4 what it thinks participatory medicine is. Here’s its...
Team Building In The Wake of the COVID-19 Pandemic

Team Building In The Wake of the COVID-19 Pandemic

Editor’s note: In her new book, Communicating Through a Pandemic: A Chronicle of Experiences, Lessons Learned, and a Vision for the Future, Amelia Burke-Garcia, PhD, MA explores the many and varied roles that communication has played over the course of this pandemic,...
Building for Success: How Good Clinicians Can Empower Patients

Building for Success: How Good Clinicians Can Empower Patients

Editor’s note: Ibrahim Rashid contracted Long COVID more than two years ago. The experience is propelling his patient advocacy and entrepreneurship, as co-founder of the digital health company Strong Haulers. In this excerpt from his new book, Strong Hauler: Learning...
How Trust Fuels Equitable Health Outcomes

How Trust Fuels Equitable Health Outcomes

At the Society for Participatory Medicine, we recognize trust and respect as a two-way relational dynamic essential to our mission to transform the culture of healthcare relationships so people can live their best lives (see our Participatory Medicine manifesto). And...
The Power of the Prescription Pad

The Power of the Prescription Pad

At some point in our lives, we’ll be handed a little sheet of paper from our physician that has scribbled on it the medication we need, how much of it, and how often we should take it. These little slips of paper are power. They tell us that in order to get better, we...
A Reminder of How To Care Through Self-Reflection

A Reminder of How To Care Through Self-Reflection

After 28 years of  nursing I could potentially consider myself an expert in the field. But this perception couldn’t be further from the truth. I still come home from a shift and often wonder and hope that I brought comfort to at least one patient. Did I do enough?...
Glimmers of Hope: Real Progress In Participatory Medicine

Glimmers of Hope: Real Progress In Participatory Medicine

Twenty-five years ago, I learned I had a large liposarcoma in my left quadricep. I have written elsewhere about my surprise when my surgeon informed me that he and the team had changed the treatment plan. What team? Who are these people? Why wasn’t I at the team...

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