by Susannah Fox | Feb 4, 2009
Wendy White, Founder and President of Siren Interactive, contributes this essay: One in ten Americans is living with a rare disorder, but they are often overlooked in the media, in research circles, and in their local communities. The 2nd Annual Rare Disease Day on...
by Susannah Fox | Jan 8, 2009
Here is my third post in a series of look-backs at the November 2008 Chronic Disease Care conference in San Francisco. (OK, yes, it’s now January 2009 — I’m savoring the experience, not Twittering it!) The first post was about spreading improvement...
by John M. Grohol, Psy.D. | Dec 16, 2008
Our savvy e-patients over at NeuroTalk noticed the launch of a new service by the Michael J. Fox Foundation, one of the leading Parkinson’s disease advocacy and research organizations. The new service, called PD Online Research, is billed as a “new web...
by e-Patient Dave | Jul 3, 2008
Today’s entry in the CNN.com “Empowered Patient” series, by medical correspondent Elizabeth Cohen, is titled Empowered heroes’ hard lessons now help others:This week, as we reflect on American heroes, we’re saluting a few “patient...
by e-Patient Dave | Jun 15, 2008
Aside from debunking a crummy column, this is a call to action for journalists. Today Parade featured a column that appears to be pure flackery. If the editors had done a reality check with a patient community they would have been much better informed, with little...
by John M. Grohol, Psy.D. | May 27, 2008
Two research papers were published this month on the Health 2.0 website, PatientsLikeMe. PatientsLikeMe is arguably the only “real” health social network online today, because it lets patients share actual data that matters with one another — their...
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