by John M. Grohol, Psy.D. | Dec 16, 2008
Our savvy e-patients over at NeuroTalk noticed the launch of a new service by the Michael J. Fox Foundation, one of the leading Parkinson’s disease advocacy and research organizations. The new service, called PD Online Research, is billed as a “new web...
by e-Patient Dave | Jul 3, 2008
Today’s entry in the CNN.com “Empowered Patient” series, by medical correspondent Elizabeth Cohen, is titled Empowered heroes’ hard lessons now help others:This week, as we reflect on American heroes, we’re saluting a few “patient...
by e-Patient Dave | Jun 15, 2008
Aside from debunking a crummy column, this is a call to action for journalists. Today Parade featured a column that appears to be pure flackery. If the editors had done a reality check with a patient community they would have been much better informed, with little...
by John M. Grohol, Psy.D. | May 27, 2008
Two research papers were published this month on the Health 2.0 website, PatientsLikeMe. PatientsLikeMe is arguably the only “real” health social network online today, because it lets patients share actual data that matters with one another — their...
by John M. Grohol, Psy.D. | Apr 28, 2008
The California HealthCare Foundation published a report the other day entitled The Wisdom of Patients: Health Care Meets Online Social Media (PDF) which is a nice overview of the current state of Health 2.0. The report is four chapters long: Social Networks Come to...
by Joe Graedon | Apr 23, 2008
For over 30 years at The People’s Pharmacy, we have been guided by a respect for people’s ability to make informed decisions about their health. We have always welcomed input from consumers, but we had viewed our website as an information dissemination...
by John M. Grohol, Psy.D. | Apr 19, 2008
I don’t know of a living soul who views Wikipedia as any type of authoritative resource. Why? Because no single person takes responsibility for any article’s content or quality. Some articles are heavily and well-edited, while others are much less so. At...
by Gilles Frydman | Mar 28, 2008
It took me a few days to digest what was troubling me with the New York Times Magazine article. The efficacy of the ACOR groups is based in part on the dual fact that patients and caregivers members of the online communities NEVER behave like they are replacing their...
by e-Patient Dave | Mar 24, 2008
I haven’t dug into this yet, but I will. You?
by e-Patient Dave | Mar 5, 2008
Today outside Boston I attended a “lunch-n-learn” session of the Massachusetts Technology Leadership Council, titled “Patient, Heal Thyself: How to Succeed with Online Consumer Health Sites.” At first I thought it was going to be about creating...
by Susannah Fox | Feb 19, 2008
An article in this week’s Journal of the American College of Surgeons shows that “patients with larger social networks showed better outcomes than patients with small or nonexistent social networks.” Here is the abstract (note: the first time I...
by Gilles Frydman | Feb 6, 2008
Susannah once again posted a series of cool/very useful links! And I know we should keep on providing definitions for all the “Health 2.0” applications we are talking about. So, out of pure laziness and because the LeFevers brothers have already done the...
by Cheryl Greene | Jan 6, 2008
For years Doc Tom urged us to facilitate patients’ publicly rating doctors as a way to accelerate e-pateints movement. Alan (DrGreene) was excited about this, even though he was a physician, but I was afraid it would open Pandora’s box. In the winter of...
by Susannah Fox | Oct 9, 2007
Sometimes my research becomes a little too much for me to bear alone. Like when I find that people living with chronic disease and disability are among the least likely to have access to the internet, but who, once online, are among the most avid e-patients. Or when I...
by Gilles Frydman | Jun 14, 2007
The internet breaks completely all geographical barriers. This is particularly important for those suffering from a rare condition and who do not have direct access to the few major cancer centers with in-house specialists for that condition. We have a developing...
by Susannah Fox | Jun 13, 2007
Laura Landro’s column in the Wall Street Journal features a series of profiles of online patient groups like MPDinfo.org and ACOR.org, among others. Now seems like the right time to post some data that I’ve been holding back, waiting for the right...
by Susannah Fox | May 10, 2007
Derek Hansen, a fellow e-health researcher, wrote to me about his latest project and it fit so perfectly that I asked him to write it up for us — thanks, Derek! ——————- Online support groups have long been recognized as an...
A cure for what killed Doc Tom! Can people afford it?June 27, 2025
Learning Health Systems Empower Every American to Actually Make America Healthy Again Together, Part 2May 29, 2025
More important than Time and MoneyFebruary 5, 2025
We Can Change the US Healthcare System: Your Health, Your VoiceJanuary 15, 2025
Recent Comments