by Kathleen O'Malley | Sep 21, 2011 |
The Journal of Participatory Medicine recently published a new commentary, “A Skydiver Jumps, and an Online Community Exults,” about the unexpected power of storytelling in a lung cancer support group. After sharing an uplifting story with her online... by e-Patient Dave | Sep 17, 2011 |
Another post from the Inspire.com network of patient communities. This one’s from New Hampshire resident Linnea Duff, an active Inspire participant who has Stage IV NSCLC (non-small-cell lung cancer). She blogs at Life And Breath. It’s often been said... by Kathleen O'Malley | Sep 12, 2011 |
Guest blogger Tami Boehmer shares a recent conversation with e-Patient Dave about the pitfalls of survival statistics and the power of hope. Tami’s blog, “From Incurable to Incredible,” is at www.miraclesurvivors.com. I recently had the honor of... by Susannah Fox | Sep 8, 2011 |
When it comes to news sites, I love scanning readers’ comments as much as the original articles. Comments are an unfiltered feed, a window into public opinion (in other words, catnip for someone like me). One thread caught my eye recently. Ron Winslow wrote a... by Susannah Fox | Jul 6, 2011 |
Here’s how tech guru Tim O’Reilly describes his work: So often, signs of the future are all around us, but it isn’t until much later that most of the world realizes their significance. Meanwhile, the innovators who are busy inventing that future live... by Susannah Fox | Jun 27, 2011 |
I’m writing an article and would love to tap into this community’s knowledge. I know of a few examples of clinical practices using Facebook and Twitter to connect with patients, such as MacArthur OB/GYN, but I’d love to learn about other examples,... by Susannah Fox | Apr 4, 2011 |
To me, there are two types of breaking news in health care: the macro and the micro. Macro health news breaks when there is a natural disaster, a scientific breakthrough, or a new twist in a policy debate (see: “ACOs“). I read up on the facts and try to... by Susannah Fox | Mar 10, 2011 |
It’s hard to say this without sounding like I’m bragging, but that’s not going to stop me: I’m going to the White House tomorrow to talk about Pew Internet Project’s latest research on peer-to-peer healthcare. The White House Office of... by e-Patient Dave | Mar 4, 2011 |
Yesterday (March 3), NPR’s popular program “Talk of the Nation” covered something we discuss often: how e-patients find information and find each other, online. Featured guests were Pat Furlong, mother of two boys with a rare disease, who started an... by Susannah Fox | Feb 25, 2011 |
Last fall, at the e-Patient Connections conference, I gave a sneak preview of some survey results which are set to be have been released on the Pew Internet site on Monday, Feb. 28. I hoped to spark new ideas for a savvy, plugged-in audience and I ended up surprising...
Join SPM’s workshop May 16 at “What’s The Fix?” at Dell Medical School. Free registration!April 18, 2018
Support @HealthHats Danny van Leeuwen’s nomination for PCORI Board of GovernorsApril 13, 2018
Psych Central podcast: “We often feel very isolated, but we have a lot more in common than we realize.”April 12, 2018
Must Do By Midnight: Comment On NIH Plan For Handling ALL Health Data!April 2, 2018
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